-
Stridor – Respiratory
Hi
Doe anyone experience similar. In my off period, I have extreme akinesia and rigidity and dystonia. I have no ability to move (complete locked in)…In off, respiratory is rough and I have stridor day and night. Messages for my lungs to breathe don’t happen. In your head you wish it but nothing, i frequently have O2 sats drop in 70s and blackout.
I have Stalevo and eledprly 4 x a day and dexamfetamine x 4 or cannabis to fire the CNS . Clozeapam 4 x day to prevent rigidity. Agnoist (sifrol and apo morphone pump worked well by extreme side affects) so not using them
I have to up my meds every 3-4 months
ANyone
-
1 Reply
-
Brad, I am so sorry to hear of your struggles. Have you looked in to a second opinion? Are you able to do exercise; even slow walking? Is it possible for you to get a massage? That does help my stiffness and rigidity.
It is unfortunate we have to frequently change our meds. I am happy my symptoms are not too bad, but I detect subtle changes in my balance, fine motor skills and bradykinesia and currently adjusting my meds.
Log in to reply.