Tagged: Dystonia and Parkinson's, Foot Inversion
- This topic has 9 replies, 5 voices, and was last updated 10 months, 2 weeks ago by
Fred Marchant.
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January 13, 2022 at 2:32 pm #22936
Fred Marchant
ParticipantMy spouse –in the seventh year since her Parkinson’s diagnosis–fell and broke her hip last June. Following a partial hip replacement surgery, she developed a “multi-focal lower limb dystonia,” or what is also called foot inversion. The resulting postural instability has left her unable to walk on her own. She has now had two Botox treatments, and there has been a slight improvement in one foot, but she is still dependent on a wheelchair for basic mobility. She works with a Physical Therapist twice weekly, using a walker, and that work helps too. But I’ve found it hard to find online useful material about this dystonia and its relation to Parkinson’s. If anyone has information about and/or experience with this issue, we would be deeply grateful for any and all suggestions, advice, practical tips.
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January 17, 2022 at 10:20 am #22959
Robert Li
ParticipantHi Fred, I am writing a website just about this subject. I don’t know much about foot inversion. However, I have seen it mentioned in passing with respect to too much manganese deposited in the basal ganglia (we’re talking micrograms). Manganese can come from surgical implants, liver issues, or industrial air pollution exposure years ago, especially if vitamin D levels are low, and is a risk factor for both PD and focal dystonias. https://dystoniahelp.org
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February 1, 2022 at 3:47 pm #23133
Fred Marchant
ParticipantThank you Robert for this note, and for the link to your website. I would look forward to more conversation in the future . All good wishes. -FJM
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February 8, 2022 at 3:05 pm #23191
Rebecca Tarver
ParticipantI get toe curling and foot inversion when I’m low on dopamine, especially with exercise.
Take a look at the website of Joaquin Farias — he has a program for dystonia that’s quite time intensive, but very interesting and apparently effective for some people. Look at the before and after videos.
It’s an online program and not expensive.
I’m not doing it yet, but I may end up there…
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February 8, 2022 at 7:05 pm #23199
Fred Marchant
ParticipantThank you Rebecca! I am going to study that FArias website and related materials, but at first glance it looks very promising. Your guiding me to it much appreciated. –fjm
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March 10, 2022 at 4:42 pm #23364
Daniel Novak
ParticipantGot full braces and then replaced my DBS STN with DBS GPi. Braces put back in the closet for now [4 years].
Best wishes
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March 25, 2022 at 11:23 am #23492
Fred Marchant
ParticipantFollowup: Thanks Again Daniel. I looked up those acronyms and see nowthat you were referring to two different deep brain stimulation targets. And now understand what you were saying, at least a little bit more. I would like to read more about DBS and Parkinson’s lower limb dystonia. I’d also like to know if there is any research on this and where that is going on. Any help, much appreciated. –fjm
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March 25, 2022 at 10:28 am #23485
Fred Marchant
ParticipantHello Daniel Novak: Thanks for your response. Forgive me, bu tI do not know what those DBS STN and DBS GPI acronyms refer to. Also, was this lower limb dystonia related to Parkinson’s? Much appreciate any help or guidance.
And glad the braces back in the closet for you.
Thanks again.
fjm
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