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    • #22936
      Fred Marchant
      Participant

      My spouse –in the seventh year since her Parkinson’s diagnosis–fell and broke her hip last June. Following a partial hip replacement surgery, she developed a “multi-focal lower limb dystonia,” or what is also called foot inversion. The resulting postural instability has left her unable to walk on her own. She has now had two Botox treatments, and there has been a slight improvement in one foot, but she is still dependent on a wheelchair for basic mobility. She works with a Physical Therapist twice weekly, using a walker, and that work helps too. But I’ve found it hard to find online useful material about this dystonia and its relation to Parkinson’s. If anyone has information about and/or experience with this issue, we would be deeply grateful for any and all suggestions, advice, practical tips.

       

    • #22959
      Robert Li
      Participant

      Hi Fred, I am writing a website just about this subject.  I don’t know much about foot inversion.  However, I have seen it mentioned in passing with respect to too much manganese deposited in the basal ganglia (we’re talking micrograms).  Manganese can come from surgical implants, liver issues, or industrial air pollution exposure years ago, especially if vitamin D levels are low, and is a risk factor for both PD and focal dystonias.  https://dystoniahelp.org

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