• Patricia Conner

    Member
    January 9, 2022 at 3:33 pm

    I  had an accident and needed cervical surgery.  My walking was badterwards.  As I was getting better, my Parkinson started.  The first Dr was American and gave me lots of pills that made me feel worse.  I am French living in an American environment.  French usually run out the door if surgery or medication are mentioned.  The second dr was Mexican S LATIN and similar to the French. He took all the pills away except Dopamine and a mild anti depressent. .  We French see Parkinson differently as we have had it 2,000 yrs  befor dopimine  was even known. It was called the shaking disease and generally early onset as we died earlier .    2,000 yrs ago til now, excercise  and diet were the way we treated the shaking disease. . We knew then that the excercise did not work if it was something of a habit.  it had to NOT be like what you do everyday.   It had to be 15 minutes twice a day of radical musical dance to the Gods and you were then ok for most of the day.  They knew habit played a role.  I took the French way with swimming three times a week, dancing and excercising to rod stewart or others upon waking and in the afternoon, and then I was fine for the other hours .We knew voice was an issue so I read French  or an article outloud with exaggeration and only 1 dopamine pill per day.     I am proud of the work that the Americans do as nowdays we can communicate both efforts..  But the medicine the american give at early onset and too much,  defies long held historical thoughts that  “little is better”. If we were able to know this before medicine,  than some of it should continue.  That some of it is “learning to live with it” via excercise, good diet, sense of humor,  etc.”   Parkinson is not the worst of the sickness especially when  one cure allows you to dance Michael Jackson, Elvis etc.   Also, if you start via medicine, you can not go back as the body adaptts and then  needs it.   But you can not just increase it.  We knew since.2,000 ago.   ANSWER:  Learn to live with it  with minimal medicine.  If it gets worse, increase excercise and than you have the the medicine there as the backup.   My Parkinson at 75 is like a women who is 75.  Ecept, I dance, and noboby can stop me.  We all laugh and they dance with me.  My real problem are my 75 yrs old  knees, they do not want to participate.    In reality, almost anyone who is older must  do excercises, diet, social stuff.  I have learnt that I will  never know the why but have learnt the how.