[Vivian]

Hello Diana,

I think this is a great idea. I live in England, but know so many caregivers are so alone in dealing with a loved one with Parkinson’s.

At the moment will don’t even have enough nurses to support Parkinson patients, let alone caregivers. We have one Neurologist to 2,000 patients and 2 nurses, we are now down to one looking after all the sufferers.

My husband was diagnosed 2 years ago, but I noticed symptoms in here more than 12 years ago. I cannot blame doctors because my husband never went to talk to a Dr about his symptoms (loss of smell, slightly hand tremor, thrashing in bed at night and slow walking). Of course angry about this because he only went to the Dr after a friend to my daughter said, sorry to see that your father has Parkinson’s. My daughter told me this and I said, I have mentioned this to your father a lot and he just ignores it. Eventually he went to the doctor and when he mentioned it she said oh yes looking at you I would definitely say you have Parkinson’s. Since diagnosis he has declined considerably, bearing in mind he is only 51, diagnosed at 49, but I believe he has had Parkinson’s for about 15 years, undiagnosed.

I feel very alone! Talking to others would be wonderful!

My very best wishes to you all

Vivian