[Valuer]

I was needing a third hand to position a screwdriver onto screws when installing ceiling fans. This when following an earlier diagnosis of RBD sleep, alerted me to PD. That was 17 years ago.

[Valuer]

Thank you jenny99 for your response. Your experience with levedopa closely matches mine. Until my PD progresses I prefer to minimise levedopa use to avoid its side effects.

[Valuer]

Thank you buster14. It appears there is a small number of us for whom levedopa has little or no effect. It would be interesting to know why. My neurologist can offer no explanation.

Cheers

[Valuer]

Thank you for suggesting Zandopa, I will give it a try

Cheers

[Valuer]

There seems to be a few of us largely unaffected by levedopa and hopefully we don’t have the much worse PSP. I have been involved in a clinical trial using Symbyx head and hand held IR units with apparent success. Could it just be the placebo effect?

[Valuer]

Hello Kathy

Thanks for your suggestion, however, I know 2 people with PSP with rapidly advancing symptoms whereas I have very slow progression.

[Valuer]

There seems to be a few of us largely unaffected by levedopa. My PD symptoms do not warrant DBS at this stage but may be necessary in future.

[Valuer]

Thanks Jeanette. I was initially prescribed a relatively high dose to the surprise of my GP but it seemed ineffective hence reducing dosage to almost nil. As I have been diagnosed for over 9 years I can rule out PSP. Perhaps I just have a very slow progressing PD.

Cheers

[Valuer]

G’day Christine

As you may guess, I am Australian and that is where the trial was conducted. BTW my sensse of smell, long gone, appears to be returning!

Cheers