TimR

Hi Ron, I am 63, diagnosed at 59 and take Azilect to hopefully slow down progression. I still have periodic tremor in left hand but I can still tie my shoes…so happy me.
I’m in mode of holding off on CL till I can’t do things with my left hand as I’m concerned about possible hallucinations.
As for sleep, I get good sleep. I’m mostly a back…[Read more]

Mine started on non-dominate left side thumb perhaps 4- 5 yrs ago, I brushed it off as ET, which my older brother and sister have.  Stress of building new home about 2yrs ago seems to have kicked tremors into high gear the way it feels.  Now left side hand only, and if I keep busy and stress low, off periods are minimal.  Take 1/2 azilect tab pe…[Read more]

North Georgia mountains, 2 hr north of Atlanta.  Been here 3 yrs, prior to that Charlotte,  North Carolina

Jean, Not familiar with her or research.  I opened the link, but couldn’t get it to calculate.  May just need to try a different browser.   Thanks for the link.  The survey looks pretty thorough it seems with most common issues.

Jean, totally get the take it and hope. I hope to for any number of breakthroughs: Halt progression, halt and repair damage/wiring, next wonder drug to be “Platinum standard “ of care vs C/L.

I might be among those who could take a low to moderate dose of C/L for a long time without complications , but being 60, too many potential years left, and…[Read more]

I would like to believe part of the reason for understanding where a patients PD is (stagewise or any somewhat objective measure), is to better understand PD and the correlation from one patient to another.  Having a broad pool of folks (like us + the rest of the PD community in the world ) who can share what works, what doesn’t and what wo…[Read more]

To answer thread questions, my doc I’m seeing about 2x yearly, and he’s not given me any rating as I recall, only that I’m still early.

Id have to believe I was in earliest stage when diagnosed, but I may have to review the definition for earlier stages.

For me it’s tremors in my left hand.  The only med I’m on is Azilect, and while it doesn’t completely eliminate my tremors, it gives me hope I can prolong period till I need LDopa.

If I’m busy in my workshop, tremors all but gone.  But, if someone shows up and especially if a stressful situation pops up, they can come back mild to ferocious…[Read more]

Sense of smell not lost on everything but can’t appreciate the outdoors smells like honeysuckle in bloom and other smells.  Been that way for a while, probably never realized till my wife with hyper keen smell would ask my about some smell and I just shrugged my shoulders.

Had septoplasty and polypectomy about 6 weeks ago, hoping to regain so…[Read more]

Occasionally, perhaps once or twice a month.

Ally and others, my primary symptom is tremors in my left hand, my non-dominant hand fortunately.  My hobby for last 10 yrs is woodturning and other woodworking.

When I’m working with my hands and jamming to classic rock or modern country music, there are no tremors, no PD for the most part.  To destress in general, I go off into a zone of doi…[Read more]

Jeffery, I echo your response.  I was diagnosed almost 2 yrs ago, and the combination of factors in my life at that time seem to have advanced my symptoms as I recognized light tremors beginning almost 4-5 yrs ago.  I retired recently and that along with other stress reducers (finishing a new home after taking control from our contractor) has m…[Read more]