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Scott Milstein

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@scottm

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  • Profile picture of Scott Milstein

    Scott Milstein replied to the topic Boxing and Parkinsons in the forum Parkinson's Disease and exercise 2 years, 4 months ago

    I am a patient. Our group went to virtual and it’s been a help. I think you have to be motivated. It’s not as good as in person. I’d have participants reach out.

  • Profile picture of rose

    rose and Profile picture of Scott MilsteinScott Milstein are now friends 2 years, 4 months ago

  • Profile picture of Beth

    Beth and Profile picture of Scott MilsteinScott Milstein are now friends 2 years, 4 months ago

  • Profile picture of Scott Milstein

    Scott Milstein started the topic Neupro patch in the forum Parkinson's Disease Medications 2 years, 11 months ago

    Does anyone have any experience with the Neupro patch. My Neurologist talked to me about it. My symptoms are still relatively light. Right arm and hand stiffness and sone leg stiffness. I’m investigating it before I make a decision.

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    Scott Milstein replied to the topic Wondering About Azilect? in the forum Using our forums 2 years, 11 months ago

    I’ve been on it for about 4 months. I read that red wine and draft beer were the culprits. However my Neuro and my Pt( who incidentally also has PD)say it’s okto have a glass of Red wine or draft beer. Very confusing

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    Scott Milstein replied to the topic Have you tried LSVT BIG therapy? in the forum Parkinson's Disease and exercise 2 years, 12 months ago

    I took it in the fall is 2019 after I was diagnosed. It’s basically about reprogramming your brain. The idea is that by taking large movements the brain will try to stretch the small movements that come with PD so they’ll be bigger( hard to explain).
    It’s worth it. It’s not a miracle of course but it will help as long as you practice after t…[Read more]

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    Scott Milstein replied to the topic Wondering About Azilect? in the forum Using our forums 2 years, 12 months ago

    I just was diagnosed in September. But I’m on Rasagline, the generic Azilect.

    I feel exactly the way you do. Everything at this point is the same. My PT takes it and says the same thing. It will be interesting for all of us as time moves on. I’m glad it’s at least maintaining the status quo.

    Keep us up to date. I’ll do the same

  • Profile picture of Scott Milstein

    Scott Milstein replied to the topic Going on vacation with Parkinson’s in the forum Living ​With​ ​Parkinson's Disease 3 years ago

    I went on vacation to Florida for 10 days recently. It was my first time since diagnosis. We also went on a short cruise. I was a little on edge since I was going to have to negotiate my way around a crowded boat. It worked out fine though I did fall once. It would be nice to get away from PD on vacation but it was relaxing.

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    Scott Milstein replied to the topic Boxing and Parkinsons in the forum Parkinson's Disease and exercise 3 years, 1 month ago

    I got involved in RSB a few weeks after diagnosis in September. It’s one of the main reasons I have been able to keep my mental state at somewhat of an easy keel. The socialization is as important as the workout.

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    Scott Milstein replied to the topic Where do you live? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 3 years, 1 month ago

    I live in the Philadelphia ,PA  area. I was diagnosed in September of this year.

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    Scott Milstein replied to the topic Difficulty getting in and out of a car in the forum Parkinson's Disease Symptoms 3 years, 1 month ago

    I find myself having trouble getting in the car. I’m not quite as bad as the original poster but it takes a bit of work to get in sometimes . Getting out not too bad.  I have to take my time and not get frustrated.

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    Scott Milstein replied to the topic How do you answer, "How are you?" in the forum Living ​With​ ​Parkinson's Disease 3 years, 2 months ago

    Lou,

    Great post. I was diagnosed in September and I haven’t had that angry stage. I think that is because of two things. First, I finally had an answer as to why things were happening. Second, I jumped into therapy and exercise immediately.

    I may get angry yet but at least for now I’ve been ok.

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    Scott Milstein replied to the topic How do you answer, "How are you?" in the forum Living ​With​ ​Parkinson's Disease 3 years, 2 months ago

    Jean, thanks for the articles. They are on my reading list for the weekend.

  • Profile picture of Scott Milstein

    Scott Milstein replied to the topic What do you think caused the onset of your PD? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 3 years, 2 months ago

    I’m going for luck of the draw.

    I can’t think of anything that caused it. I never took any pills except Lipitor. Never was into drugs. Never smoked.I think I missed a handful of days for work since I started working at 16, 47 years ago. Before this I was the guy who was never sick a day in his life .

    The only thing I do in excess is eat ice cre…[Read more]

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    Scott Milstein replied to the topic How do you answer, "How are you?" in the forum Living ​With​ ​Parkinson's Disease 3 years, 2 months ago

    Mary Beth, I too do Rock Steady. I never thought I’d get into boxing but I like it! I just keep moving.

  • Profile picture of Scott Milstein

    Scott Milstein replied to the topic Why did you join this forum? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 3 years, 2 months ago

    I just joined. I was diagnosed September 13, though looking back the symptoms were there for a few years.
    I joined because I want to reach out and learn from people in the PD community. I am a newbie to this and feel I can learn so much from a forum like this.

    Basically  I want to reach out and help and also be helped. I want to make some…[Read more]

    • Profile picture of Mary Beth Skylis
      Mary Beth Skylis replied 3 years, 2 months ago

      Scott, that’s great and part of why I like to be involved here too. It gives me a lot of insight into what things might be happening in my Dad’s life (diagnosed in 2013). And laughter is such a good way to handle challenges. I’m glad you joined. Please feel free to let me know if you have any questions. I’m a forum moderator and am always eager to…[Read more]

  • Profile picture of Scott Milstein

    Scott Milstein replied to the topic How do you answer, "How are you?" in the forum Living ​With​ ​Parkinson's Disease 3 years, 2 months ago

    Hi Mary Beth,

    I thought I would feel more relief than I did feel.  This might be because I’m more concerned about my parents and in laws. I still have a few friends to tell. I think this is all part of the acceptance phase, which I think takes a while. I’m out there exercising and my local fitness place has a PD specific program. I think in my m…[Read more]

    • Profile picture of Mary Beth Skylis
      Mary Beth Skylis replied 3 years, 2 months ago

      Scott, it sounds like you’re taking things one step at a time. And that’s awesome. My Dad still doesn’t like to share the details unless he has to. And the exercise regimen sounds great. He boxes with Rock Steady and he really loves it.

  • Profile picture of Scott Milstein

    Scott Milstein replied to the topic How do you answer, "How are you?" in the forum Living ​With​ ​Parkinson's Disease 3 years, 2 months ago

    Hi Ally, I don’t mind answering at all. There are a few people who do know. I’ve been telling them as I see them. Since I work for my Brother in law, him and his wife know. I have told some of our closest friends. ( interestingly they all were fighting back tears and I’m telling them have faith because I’m doing everything to fight it).
    It…[Read more]

    • Profile picture of Mary Beth Skylis
      Mary Beth Skylis replied 3 years, 2 months ago

      Hey Scott, My Dad (diagnosed in 2013) has always been very private about who he tells too. He’s at the point where his immediate circle knows and a handful of friends know too. When you told your close circle about PD, did you feel a relief?

  • Profile picture of Scott Milstein

    Scott Milstein replied to the topic How do you answer, "How are you?" in the forum Living ​With​ ​Parkinson's Disease 3 years, 2 months ago

    I haven’t told many people so I just usually say I’m doing great. If they ask about the limp I just usually just say it’s my back. If it’s someone I told I may go a little bit deeper but generally I keep it simple.

  • Profile picture of Scott Milstein

    Scott Milstein replied to the topic Working in the forum Living ​With​ ​Parkinson's Disease 3 years, 2 months ago

    I think so. They want me to do my job and do what I need to do to try to stay healthy. I worry a bit because I drive a lot for the job but I’m taking one day at a time.

    • Profile picture of Mary Beth Skylis
      Mary Beth Skylis replied 3 years, 2 months ago

      Scott, that sounds like a good approach. My Dad was diagnosed with PD in 2013. He’s still pretty independent and gets around on his own. He has learned how to time his medications pretty well, so he
      has a pretty good feel for when they’ll start working. And this has allowed him to stay pretty self-sufficient.

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This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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