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richard cooling replied to the topic Humor and Parkinson’s in the forum Diagnosis Information and General Questions 1 month, 1 week ago
I would love to hear some good jokes. I’ve been kinda down on my parky lately. 😀
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richard cooling replied to the topic Levodopa Reduction? in the forum Parkinson's Disease Medications 1 month, 1 week ago
Agree
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richard cooling posted a new activity comment 1 month, 2 weeks ago
He’s lucky to have such a caring wife! Good luck and happy holidays 🙂
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richard cooling posted a new activity comment 1 month, 2 weeks ago
I believe the mucuna puriens is a bean that contains natural levadopa. Sounds like the natural way works better for your husband.
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richard cooling posted a new activity comment 1 month, 2 weeks ago
Very interesting. Thank you.
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richard cooling replied to the topic Levodopa Reduction? in the forum Parkinson's Disease Medications 1 month, 2 weeks ago
Hi Gary-
I split the tablet, take 1/2; then split the remaining half and take the quarter. Works in a rough way.
Don’t know what DHVY is?
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richard cooling replied to the topic Levodopa Reduction? in the forum Parkinson's Disease Medications 1 month, 2 weeks ago
Thank you Sherman, I forgot about DBS.
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richard cooling started the topic Levodopa Reduction? in the forum Parkinson's Disease Medications 1 month, 2 weeks ago
Hi. I am 63 yrs. old with 7 yrs. since diagnosis. Currently, I take .75 mgs. levodopa every 2 hours from waking ’till evening. If I take less or extend the time between doses, I am “off.”
I’ve come across statements over the years suggesting the author was able to reduce or eliminate levodopa (sinemet). I have never been able to verify the…[Read more]
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richard cooling replied to the topic What are all of your symptoms that are PD related. Please list them. in the forum Parkinson's Disease Symptoms 2 months, 3 weeks ago
In addition to the others mentioned, my eyes and nose weep in the evening and my toes curl under…
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richard cooling replied to the topic Dealing with loss in the forum Living With Parkinson's Disease 2 months, 3 weeks ago
Wow Ally, good topic! Dealing with loss and acceptance are perhaps the hardest part of the disease for me.
PD stopped me from working at 60, while I planned to work until at least 70. I fully expected to spend my retirement traveling with my wife, etc., just like the TV commercials. So, the first loss was my lucrative career and active re…[Read more]
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richard cooling replied to the topic PD and cardiac symptoms in the forum Using our forums 3 months ago
Hi Jorge-
Just curious, how much sinemet do you take daily to feel well?
Thanks,
Richard -
richard cooling replied to the topic How do you manage fatigue? in the forum Parkinson's Disease Symptoms 3 months, 1 week ago
Hi Alan-
Funny how it makes you feel better that someone understands what you are going through. Anyway, I do have some thoughts on apathy: First, make sure you are not depressed. Early on, I read some accounts of depression with apathy as an additional symptom of depression. I don’t believe I am depressed now because I am happy, etc. But…[Read more]
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richard cooling replied to the topic Have you found that going to the gym increases your energy? in the forum Parkinson's Disease and exercise 3 months, 2 weeks ago
I am 62 and seven years post diagnosis. Two years ago I was an avid cyclist. Now I have trouble walking.
Exercise is better than my medicines, but one size does not fit all. I’ve tried everything except boxing.
Presently I do pool aerobics for about 50 minutes six days a week in a heated pool at the YMCA with foam barbells. It gives me…[Read more]
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richard cooling replied to the topic How do you manage fatigue? in the forum Parkinson's Disease Symptoms 3 months, 2 weeks ago
Hi Mary Beth-
I wish I had a daughter asking as many questions as you! I am 62 and seven years since diagnosis.Anyway, fatigue is my worst symptom. Fatigue has many meanings. For me, I mean that I grow so tired I need to lay down for an hour or more, two or more times a day. It’s not constant, but varies from hour to hour. There is little…[Read more]
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richard cooling replied to the topic Do you struggle with PD-related pain? If so, how do you manage it? in the forum Parkinson's Disease Symptoms 4 months, 2 weeks ago
early in my journey, i simply could not get comfortable in bed. i bought a new tempurpedic bed and i felt stuck in it. after reading a post on how good they were for PWP, i bought a $10k sleep number mattress with bells and whistles. soon, i came to hate it t0o (i call it the air burrito).
then, like goldilocks, i slept one night on an i…[Read more]
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richard cooling replied to the topic What do you do to support yourself when your symptoms flare up? in the forum Living With Parkinson's Disease 4 months, 2 weeks ago
sherman-
on rising from bed, i take levodopa as soon as i wake and take time to read the news; i sleep on satin to slide easily out of bed; once up, i drink strong coffee and move around every day in the heated pool at the Y. this, together with an optimistic attitude helps me in the mornings.
mary beth-
naps and bed rest work best for me…[Read more]
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richard cooling replied to the topic Being treated like you're stupid. in the forum Living With Parkinson's Disease 4 months, 2 weeks ago
wow, that’s an incredible story and that guy is definitely not your friend!
i too can’t multitask or process as quick as i used to, and your story reminds me of a couple of my own. first, it’s being reprimanded by my otherwise loving spouse who forgets at times why i brought home the wrong thing from the grocery, my inability to move in heat or…[Read more]
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richard cooling replied to the topic Do you identify as disabled? in the forum Living With Parkinson's Disease 5 months ago
I really dislike the label, “disabled.” Let me explain: Diagnosed at 55, I was forced to retire my law practice at 60 because of problems with walking, diskenesias, holding urine, fatigue, memory and concentration (among other things). On advice, I applied for SS disability and was promptly denied. Frustrated, I appealed the decision. When…[Read more]
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richard cooling became a registered member 5 months ago
He recently had Covid which sent his PD haywire. He was freezing on the spot. I had to help him out if bed etc. We went back onto the Keto diet – very few carbs, no sugar and his movement returned slowly but surely. He went back onto his treadmill and did 5 minutes. He does that every other day building up.
He’s lucky to have such a caring wife! Good luck and happy holidays 🙂