richard cooling

I would love to hear some good jokes.    I’ve been kinda down on my parky lately.  😀

Agree

Hi Gary-

I split the tablet, take 1/2; then split the remaining half and take the quarter.  Works in a rough way.

Don’t know what DHVY is?

Thank you Sherman, I forgot about DBS.

In addition to the others mentioned, my eyes and nose weep in the evening and my toes curl under…

Wow Ally, good topic!  Dealing with loss and acceptance are perhaps the hardest part of the disease for me.

PD stopped me from working at 60, while I planned to work until at least 70.  I fully expected to spend my retirement traveling with my wife, etc., just like the TV commercials.  So, the first loss was my lucrative career and active re…[Read more]

Hi Jorge-
Just curious, how much sinemet do you take daily to feel well?
Thanks,
Richard

Hi Alan-

Funny how it makes you feel better that someone understands what you are going through.  Anyway, I do have some thoughts on apathy:  First, make sure you are not depressed.  Early on, I read some accounts of depression with apathy as an additional symptom of depression.  I don’t believe I am depressed now because I am happy, etc.  But…[Read more]

I am 62 and seven years post diagnosis. Two years ago I was an avid cyclist. Now I have trouble walking.

Exercise is better than my medicines, but one size does not fit all. I’ve tried everything except boxing.

Presently I do pool aerobics for about 50 minutes six days a week in a heated pool at the YMCA with foam barbells. It gives me…[Read more]

Hi Mary Beth-
I wish I had a daughter asking as many questions as you! I am 62 and seven years since diagnosis.

Anyway, fatigue is my worst symptom. Fatigue has many meanings. For me, I mean that I grow so tired I need to lay down for an hour or more, two or more times a day. It’s not constant, but varies from hour to hour. There is little…[Read more]

early in my journey, i simply could not get comfortable in bed.  i bought a new tempurpedic bed and i felt stuck in it. after reading a post on how good they were for PWP, i bought a $10k sleep number mattress with bells and whistles.  soon, i came to hate it t0o (i call it the air burrito).

then, like goldilocks, i slept one night on an i…[Read more]

sherman-

on rising from bed, i take levodopa as soon as i wake and take time to read the news; i sleep on satin to slide easily out of bed; once up, i drink strong coffee and move around every day in the heated pool at the Y.  this, together with an optimistic attitude helps me in the mornings.

mary beth-

naps and bed rest work best for me…[Read more]

wow, that’s an incredible story and that guy is definitely not your friend!

i too can’t multitask or process as quick as i used to, and your story reminds me of a couple of my own.  first, it’s being reprimanded by my otherwise loving spouse who forgets at times why i brought home the wrong thing from the grocery, my inability to move in heat or…[Read more]

I really dislike the label, “disabled.”  Let me explain:  Diagnosed at 55, I was forced to retire my law practice at 60 because of problems with walking, diskenesias, holding urine, fatigue, memory and concentration (among other things).  On advice, I applied for  SS disability and was promptly denied.  Frustrated, I appealed the decision.  When…[Read more]