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richard cooling

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@richardcooling

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    richard cooling replied to the topic Humor and Parkinson’s in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 month, 1 week ago

    I would love to hear some good jokes.    I’ve been kinda down on my parky lately.  😀

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    richard cooling replied to the topic Levodopa Reduction? in the forum Parkinson's Disease Medications 1 month, 1 week ago

    Agree

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    richard cooling posted a new activity comment 1 month, 2 weeks ago

    He’s lucky to have such a caring wife! Good luck and happy holidays 🙂

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    richard cooling posted a new activity comment 1 month, 2 weeks ago

    I believe the mucuna puriens is a bean that contains natural levadopa. Sounds like the natural way works better for your husband.

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    • Profile picture of Elaine Lucas
      Elaine Lucas replied 1 month, 2 weeks ago

      He recently had Covid which sent his PD haywire. He was freezing on the spot. I had to help him out if bed etc. We went back onto the Keto diet – very few carbs, no sugar and his movement returned slowly but surely. He went back onto his treadmill and did 5 minutes. He does that every other day building up.

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        richard cooling replied 1 month, 2 weeks ago

        He’s lucky to have such a caring wife! Good luck and happy holidays 🙂

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    richard cooling posted a new activity comment 1 month, 2 weeks ago

    Very interesting. Thank you.

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    richard cooling replied to the topic Levodopa Reduction? in the forum Parkinson's Disease Medications 1 month, 2 weeks ago

    Hi Gary-

    I split the tablet, take 1/2; then split the remaining half and take the quarter.  Works in a rough way.

    Don’t know what DHVY is?

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    richard cooling replied to the topic Levodopa Reduction? in the forum Parkinson's Disease Medications 1 month, 2 weeks ago

    Thank you Sherman, I forgot about DBS.

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    richard cooling started the topic Levodopa Reduction? in the forum Parkinson's Disease Medications 1 month, 2 weeks ago

    Hi.  I am 63 yrs. old with 7 yrs. since diagnosis.  Currently, I take .75 mgs. levodopa every 2 hours from waking ’till evening.  If I take less or extend the time between doses, I am “off.”

    I’ve come across statements over the years suggesting the author was able to reduce or eliminate levodopa (sinemet).  I have never been able to verify the…[Read more]

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    richard cooling replied to the topic What are all of your symptoms that are PD related. Please list them. in the forum Parkinson's Disease Symptoms 2 months, 3 weeks ago

    In addition to the others mentioned, my eyes and nose weep in the evening and my toes curl under…

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    richard cooling replied to the topic Dealing with loss in the forum Living ​With​ ​Parkinson's Disease 2 months, 3 weeks ago

    Wow Ally, good topic!  Dealing with loss and acceptance are perhaps the hardest part of the disease for me.

    PD stopped me from working at 60, while I planned to work until at least 70.  I fully expected to spend my retirement traveling with my wife, etc., just like the TV commercials.  So, the first loss was my lucrative career and active re…[Read more]

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    richard cooling replied to the topic PD and cardiac symptoms in the forum Using our forums 3 months ago

    Hi Jorge-
    Just curious, how much sinemet do you take daily to feel well?
    Thanks,
    Richard

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    richard cooling replied to the topic How do you manage fatigue? in the forum Parkinson's Disease Symptoms 3 months, 1 week ago

    Hi Alan-

    Funny how it makes you feel better that someone understands what you are going through.  Anyway, I do have some thoughts on apathy:  First, make sure you are not depressed.  Early on, I read some accounts of depression with apathy as an additional symptom of depression.  I don’t believe I am depressed now because I am happy, etc.  But…[Read more]

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    richard cooling replied to the topic Have you found that going to the gym increases your energy? in the forum Parkinson's Disease and exercise 3 months, 2 weeks ago

    I am 62 and seven years post diagnosis. Two years ago I was an avid cyclist. Now I have trouble walking.

    Exercise is better than my medicines, but one size does not fit all. I’ve tried everything except boxing.

    Presently I do pool aerobics for about 50 minutes six days a week in a heated pool at the YMCA with foam barbells. It gives me…[Read more]

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    richard cooling replied to the topic How do you manage fatigue? in the forum Parkinson's Disease Symptoms 3 months, 2 weeks ago

    Hi Mary Beth-
    I wish I had a daughter asking as many questions as you! I am 62 and seven years since diagnosis.

    Anyway, fatigue is my worst symptom. Fatigue has many meanings. For me, I mean that I grow so tired I need to lay down for an hour or more, two or more times a day. It’s not constant, but varies from hour to hour. There is little…[Read more]

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    richard cooling replied to the topic Do you struggle with PD-related pain? If so, how do you manage it? in the forum Parkinson's Disease Symptoms 4 months, 2 weeks ago

    early in my journey, i simply could not get comfortable in bed.  i bought a new tempurpedic bed and i felt stuck in it. after reading a post on how good they were for PWP, i bought a $10k sleep number mattress with bells and whistles.  soon, i came to hate it t0o (i call it the air burrito).

    then, like goldilocks, i slept one night on an i…[Read more]

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    richard cooling replied to the topic What do you do to support yourself when your symptoms flare up? in the forum Living ​With​ ​Parkinson's Disease 4 months, 2 weeks ago

    sherman-

    on rising from bed, i take levodopa as soon as i wake and take time to read the news; i sleep on satin to slide easily out of bed; once up, i drink strong coffee and move around every day in the heated pool at the Y.  this, together with an optimistic attitude helps me in the mornings.

    mary beth-

    naps and bed rest work best for me…[Read more]

  • Profile picture of richard cooling

    richard cooling replied to the topic Being treated like you're stupid. in the forum Living ​With​ ​Parkinson's Disease 4 months, 2 weeks ago

    wow, that’s an incredible story and that guy is definitely not your friend!

    i too can’t multitask or process as quick as i used to, and your story reminds me of a couple of my own.  first, it’s being reprimanded by my otherwise loving spouse who forgets at times why i brought home the wrong thing from the grocery, my inability to move in heat or…[Read more]

  • Profile picture of richard cooling

    richard cooling replied to the topic Do you identify as disabled? in the forum Living ​With​ ​Parkinson's Disease 5 months ago

    I really dislike the label, “disabled.”  Let me explain:  Diagnosed at 55, I was forced to retire my law practice at 60 because of problems with walking, diskenesias, holding urine, fatigue, memory and concentration (among other things).  On advice, I applied for  SS disability and was promptly denied.  Frustrated, I appealed the decision.  When…[Read more]

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    richard cooling became a registered member 5 months ago

    • Profile picture of Mary Beth Skylis
      Mary Beth Skylis replied 5 months ago

      Hi Richard,
      Thank you for joining out forums. Please let me know if you have any questions.

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