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Philippe Joly started the topic Testing by mjff in the forum Parkinson's Disease alternative treatments 6 months, 3 weeks ago
I am wondering if there could be a role for mjff in sponsoring or even carrying out testing for natural supplements which are attracting interest and positive testimonies within the community expressing itself in these blogs. There could be a general consultation and screening or the top 1 to 3 substances overseen by the scientific commity then…[Read more]
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Philippe Joly replied to the topic Butyric Acid and Niacin in the forum Parkinson's Disease alternative treatments 9 months ago
Thank you for your answers. They are comforting and I feel like trying again, which I will probably do around end of June, as I have a meeting with a new neurologist around mid June and I don’t want to complicate the picture of my symptoms before that. But I ‘ve already bought it, so here we are, and I will let you know for sure if anything good…[Read more]
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Philippe Joly replied to the topic Butyric Acid and Niacin in the forum Parkinson's Disease alternative treatments 9 months, 1 week ago
Thank you Russ and Murray for sharing details on butyric acid product quantity and quality. I could be interested to try again, but I have a question yet:
– I understand your dosage is quite higher than the manufacturer recommends. Do you have other information on maximum intake and have you noticed adverse side effects.
Thanks again for your…[Read more]
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Philippe Joly replied to the topic Butyric Acid and Niacin in the forum Parkinson's Disease alternative treatments 9 months, 2 weeks ago
I use niacin (also named vitami B3) occasionally as a sleeping aid as it is a precursor to melatonin. I have not felt significant effects on parkinson’s symptoms but I consider it could be a bonus.
I tried butyric acid also with no noticeable effects. Likewise with a couple other products. It seems now to me interesting to monitor the news flow…[Read more]
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Philippe Joly replied to the topic Butyric Acid and Niacin in the forum Parkinson's Disease alternative treatments 9 months, 2 weeks ago
I use niacin (also named vitami B3) occasionally as a sleeping aid as it is a precursor to melatonin. I have not felt significant effects on parkinson’s symptoms but I consider it could be a bonus.
I tried butyric acid also with no noticeable effects. Likewise with a couple other products. It seems now to me interesting to monitor the news flow…[Read more]
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Philippe Joly replied to the topic Are you taking any vitamin supplements to help your symptoms? in the forum Parkinson's Disease alternative treatments 1 year, 4 months ago
On top of butyric acid, the above interesting article posted by Russ refers frequently also to the role of niacin- this is in fact Vitamin B3. The article considers that niacin is depleted when you have PD, resulting in inflammation, and one of the benefits of butyric acid would be to compensate for that lack of B3.
So perhaps another pill to…[Read more]
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Philippe Joly replied to the topic Are you taking any vitamin supplements to help your symptoms? in the forum Parkinson's Disease alternative treatments 1 year, 4 months ago
Besides vitamins as such I use for taking care of my intestine :
– L glutamine ( widely mentionned for leaky gut)
– digestives enzymes (if you feel heavy after meals)
– probiotics (still a rather new field but this can help restoring your microbiome)
I also take curcuma, q10 and omega3 from time to time.
For vitamines I would like…[Read more]
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Philippe Joly replied to the topic Have you had bad luck using generic vs. brand meds? in the forum Parkinson's Disease Medications 1 year, 4 months ago
I have occasionally been given generic Sinemet and I found it to be 25 to 30% less effective (based on an overall guess, not a scientific assessment). Since then, I have always insisted on being given the brand product. And this was before the new Sinemet.
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Philippe Joly replied to the topic Azilect/rasagaline; have you tried it? in the forum Parkinson's Disease Medications 1 year, 4 months ago
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<li style=”text-align: left;”>I started using Azilect back in 2009, about one or two years after being diagnosed as it was beîng relaunched in my country (France) after several years off and some improvements. At the time it was supported by hints as to its possible protective effets as well as positive effets on the overall mood for peu…
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Philippe Joly became a registered member 1 year, 4 months ago
hi philippe
Welcome to the forum! I am one of the moderators, diagnosed in 2015 at age 61. If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic: