Patricia B Wargo

I tend to think in terms of bullet points when responding to such a broad question as “Staying Motivated,” So here are the ones I’ve thought of while reading the previous posts:
1. Exercise has proven to be essential to maintaining my motivation, specifically Rock Steady Boxing. It provides not only a tremendous workout, but socializing with…[Read more]

I was diagnosed in September 2004, 3 months prior to my husband’s retirement. Talking openly about my symptoms and including him in discussions with my neurologist at my appointments, has benefited my level of care. together we make up a list of questions and observations about my symptoms prior to each neurological appointment. Discussion of…[Read more]

Our RSB coaches have developed routines weekly for us to keep up with our exercise. They even do a scheduled zoom session each week so we can participate “together” doing the routine. I also signed up for the LSVT/pwr4life program with a local physical therapist who provided the program via telemed. The RSB coaches have also provided an…[Read more]

My last check in was via telemed. It worked out fine. My next appointment is at the office. (unless I hear otherwise).  If I didn’t feel I need an adjustment to my DBS stimulator, then I could see doing another telemed appointment. We certainly enjoyed the fact that we didn’t have a 2 hour commute each way, an hour of which is spent on a commuter…[Read more]

I agree with continuing to stay at home, but will be a much happier individual if I am able to see my grandchildren and reschedule some of the social activities with small groups, masks and distancing.  I’m willing to take  a risk with close friends and family.

I have been taking Azilect, and more recently, Rasagaline for 15 years with no ill effects or reactions to it. Yes, I have continued to eat cheeses with no problems occurring.  Since I had DBS surgery 5 years ago, I am down to taking meds 3 times per day as opposed to 5 times per day, with no wearing off as I’d been experiencing prior to the…[Read more]

We have a trip planned for the Fall for a river cruise in Europe. I am a little concerned about the amount of walking involved, but will take a cane and my walking sticks for negotiating the shore tours.  I have found that taking long flights (to New Zealand and Africa) require an aisle seat, so I can get up and stretch every hour or so.  Also i…[Read more]

I had DBS surgery  4.5 years ago.  My experience was totally positive.  I was diagnosed with PD in September 2004 and had my DBS surgery in October 2015. The timing of DBS surgery should be considered  following a thorough discussion and treatment of your symptoms with both your neurologist and neurosurgeon.

DBS surgery improved the following for…[Read more]