Bill

At my wife and my daughter’s suggestion, I got an Apple watch over the Thanksgiving holiday. Mine is the simplest version, and one thing it does is keep track of the amount of sleep I get and the various sleep stages. This information is automatically transferred to my Iphone.  The increased awareness has me going to bed earlier and sleeping…[Read more]

Guess I might have also reported that I’m 78 years old and have Parkinson’s Disease and remain pretty active.  No more jabs here.  Seven days into this round of Covid, I’m feeling better. Staying away from others and the gym as I await a negative test.

As before, I got the first two shots, got Covid, no boosters after having Covid. Currently in my second go round of Covid. Still have seen no compelling evidence that shots or boosters do alot of good. Claims of “less severity” seem impossible to scientifically prove.

Doing this on your own is not, in my opinion, the way to go. I live half way between two relative small towns/cities and participate in support groups in each of them. Additionally,  I go to Rock Steady Boxing three days a week and participate in The Loud Crowd, a program of The Parkinson’s Voice Project. Attended a local symposium on Saturday…[Read more]

Yes, part of which has to do with problems emptying my bladder, however for the past year I’ve been using a catheter three times a day and that has all but eliminated that part of my sleeping problems. That solution to the bladder problem is one I avoided for several years, however do no regret making the decision. Still have trouble staying…[Read more]

Yes, still have it and drive almost daily. At age 78, I have been doing so for most of the last 64 years.  I live in the sticks and almost everything one might need is at least 25 to 30 minutes from my home. Should I get to the point where I can’t drive, I imagine we would move into town. I was diagnosed 4 years ago and symptoms are pretty well…[Read more]

I share a house with my wife and two cats (Mac and Apple.) The cats have been with us about 2 years and are very affectionate and entertaining. Just like their humans, the cats have the particular set of behaviors, many of which, put a smile on my face or a chuckle in my throat. Each night as I get ready for bed and get my current book ready to…[Read more]

I share a house with my wife and two cats (Mac and Apple.) The cats have been with us about 2 years and are very affectionate and entertaining. Just like their humans, the cats have the particular set of behaviors, many of which, put a smile on my face or a chuckle in my throat. Each night as I get ready for bed and get my current book ready to…[Read more]

Probably not. Got the first round of two shots. Got Covid anyway. Absolutely no way to prove the shots helped any. Now have the shots and the antibodies from having Covid. Once again, no way to prove that puts me in a better or worse position.  Too many obvious lies by people in power who said they were following the science and clearly were…[Read more]

No guarantee here, however a couple of ideas. I take a slow release carbidopa/levodopa at night and in the morning in addition to the regular one. Also will occasionally take the PM version of Alieve which helps. I have problems with urine retention and catheterize right before going to bed which really helps. May still wake up, but fewer times.

I have a narrow foot and wear New Balance 990V5 shoes that are available in 2A, B and other sizes. Top quality construction, fit properly.  Others athletic shoes I’ve tried don’t offer the stability and fit as these.  Cost a little more, made in USA and worth every penny.

Kevin, Knowing where it came from is sort of the booby prize. There is a tremendous support system out there for Parkinson’s patients and their caregivers . . . a support system that will make a difference. Find a local group, do things that will keep you upright and moving.  At 77, I have Parkinson’s, it does not yet have me.

Texas Hill Country, USA

Agent Orange exposure in Vietnam. Spent 11 months on the rivers in the Mekong Delta. We were in areas which were sprayed and 100% of the water we used came from the rivers and was contaminated with AO. There are no prizes for knowing the origin of the PD, however the tremendous support system available to us is a gift. In many ways, at age 77, I…[Read more]

First symptoms, although I didn’t know it at the time, was the occasional incontinence during the day. Dang bladder would just cut loose and dump some urine. There was leakage through out the day. I was diagnosed about 4 years ago and my frequency increased to 20-25 day day, big problems with UTIs. The other issue that I didn’t recognize as part…[Read more]