Mitchell Niese

My main symptom, tremor, disappeared for few days but slowly returned as the brain swelling went down. I did sound totally
drunk for week. But, overall nothing of a big concern.
So happy for your fathers positive final result!

Linda, I had the totally asleep MRI guided DBS just 1 year ago at age 66. It went easier dared to hope for. At this point I get by w/o any meds. You asked about the placement of the generator; you’ll be sore for a few weeks but soon get around w/o knowing it’s there. Your only limitation is no skydiving.
My recommendation is if the Dr’s say it wi…[Read more]

The first 6 months post DBS I was able to go without any medication. Recently I’ve begun taking 1 or 2 C/L per day. It helps with breakthru tremors and seems to help with stiffness and slowness enough to get a good workout, which always calms me and makes me feel better. Before DBS I was taking
2 C/L 25/100 4 x per day and never felt as energetic…[Read more]

Fran,

Your reasoning is very sound. You are listen and learning but remember no 2 people have the same Parkinson’s or the same desires. Your doctors should give you straight advise, much better than our antidotes. Trust whatever YOU decide.

On a personal note. I had nearly the same questions 6 months ago. Had DBS 5 months ago just 2 years after…[Read more]

Nancy,

The need to take meds after DBS would be because of the type of symptoms, the severity and how symptom free you want to be. I get along w/o meds 95% of the time but when I golf I take a levadopa to get the last 5% of the tremor that arises in stressful situations. Some symptoms are just easier to control with DBS.

I’ve never heard about…[Read more]

Cap,

Enjoy the “pain and veritable torture”, while I take any and all relief offered today to live long enough to enjoy the cure.

Mitch

Barbara, so sorry to hear your DBS experience. Like you I had DBS this past April. But, unlike you my outcome has been 100% positive.

Don’t be discouraged, it may take some extra effort to get it “tuned in” just right for you. During my programming sessions I’ve watched my left hand as it appeared to be possessed. They were able to open and close…[Read more]

Sabine,

The 2 programs are interesting. I just had DBS in April 2022 and it works great on my tremors, which is my main complaint and i stopped the programming session when the tremors stopped. I was so thrilled with that! But I would like to improve my ability stride with my right leg and I’m going to look what they can do with that also.

Your…[Read more]

Barbara,

Like you I had both BDS surgeries in April 2022. My experience is a 100% positive.

I’m a 66 year old male with severe resting tremors for 3 years. Its unbelievable to see the tremors just stop in the arm, hands, leg and feet! I can sit and relax for the first time in years. The pain and stiffness in the arm and leg have subsided with…[Read more]

I’m currently investigating getting DBS and would like to here anyone’s experience with DBS.