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Mitchell Niese

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@mitchniese

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    Mitchell Niese replied to the topic Have you had to adjust your Levodopa dosage? in the forum Parkinson's Disease Medications 2 months, 2 weeks ago

    The first 6 months post DBS I was able to go without any medication. Recently I’ve begun taking 1 or 2 C/L per day. It helps with breakthru tremors and seems to help with stiffness and slowness enough to get a good workout, which always calms me and makes me feel better. Before DBS I was taking
    2 C/L 25/100 4 x per day and never felt as energetic…[Read more]

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    Mitchell Niese replied to the topic What are your thoughts about Deep Brain Stimulation? in the forum Parkinson's Disease alternative treatments 4 months, 1 week ago

    Fran,

    Your reasoning is very sound. You are listen and learning but remember no 2 people have the same Parkinson’s or the same desires. Your doctors should give you straight advise, much better than our antidotes. Trust whatever YOU decide.

    On a personal note. I had nearly the same questions 6 months ago. Had DBS 5 months ago just 2 years after…[Read more]

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    Mitchell Niese replied to the topic What are your thoughts about Deep Brain Stimulation? in the forum Parkinson's Disease alternative treatments 4 months, 1 week ago

    Nancy,

    The need to take meds after DBS would be because of the type of symptoms, the severity and how symptom free you want to be. I get along w/o meds 95% of the time but when I golf I take a levadopa to get the last 5% of the tremor that arises in stressful situations. Some symptoms are just easier to control with DBS.

    I’ve never heard about…[Read more]

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    Mitchell Niese replied to the topic What are your thoughts about Deep Brain Stimulation? in the forum Parkinson's Disease alternative treatments 4 months, 1 week ago

    Cap,

    Enjoy the “pain and veritable torture”, while I take any and all relief offered today to live long enough to enjoy the cure.

    Mitch

  • Profile picture of Mitchell Niese

    Mitchell Niese replied to the topic Do you identify as disabled? in the forum Living ​With​ ​Parkinson's Disease 4 months, 1 week ago

    Barbara, so sorry to hear your DBS experience. Like you I had DBS this past April. But, unlike you my outcome has been 100% positive.

    Don’t be discouraged, it may take some extra effort to get it “tuned in” just right for you. During my programming sessions I’ve watched my left hand as it appeared to be possessed. They were able to open and close…[Read more]

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    Mitchell Niese replied to the topic What are your thoughts about Deep Brain Stimulation? in the forum Parkinson's Disease alternative treatments 5 months ago

    Sabine,

    The 2 programs are interesting. I just had DBS in April 2022 and it works great on my tremors, which is my main complaint and i stopped the programming session when the tremors stopped. I was so thrilled with that! But I would like to improve my ability stride with my right leg and I’m going to look what they can do with that also.

    Your…[Read more]

  • Profile picture of Mitchell Niese

    Mitchell Niese replied to the topic Day 11 of #30DaysofPD: Deep Brain Stimulation Gave Me Back My Life in the forum 30 Days of Parkinson’s 5 months ago

    Barbara,

    Like you I had both BDS surgeries in April 2022. My experience is a 100% positive.

    I’m a 66 year old male with severe resting tremors for 3 years. Its unbelievable to see the tremors just stop in the arm, hands, leg and feet! I can sit and relax for the first time in years. The pain and stiffness in the arm and leg have subsided with…[Read more]

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    Mitchell Niese replied to the topic Have you undergone Deep Brain Stimulation? in the forum Parkinson's Disease alternative treatments 12 months ago

    I’m currently investigating getting DBS and would like to here anyone’s experience with DBS.

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    Mitchell Niese became a registered member 1 year, 10 months ago

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This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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