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    • #19030
      Kam
      Participant

      Toni, I private messaged you :).

    • #18965
      Kam
      Participant

      Andrew, I think you are making some great points here. I don’t disagree with you; more I just want a multi pronged approach. I had a holistic doctor actually encouraged me to go on carbidopa levodopa because just like you said she said it would allow me to exercise which would ultimately help. Right now I feel like I’m on a little too much but that’s beside the point. Thank you. I think you made some very valid points and also you’re making me feel better about being on medication LOL.

    • #18958
      Kam
      Participant

      Thank you, Michel! I agree with your stance: I am not against drugs, but my goal too is minimizing their use or using them as part of a larger strategy.

      Thank you so much for checking with the moderators. It would be lovely to be part of a sub-group/community as we deal with all this. 🙂

       

    • #18944
      Kam
      Participant

      Michel,

      I’ve been reading your posts with interest — I was diagnosed almost a year ago and now trying to catch up more with the holistic stuff.  I had a period of feeling decent, but bit by bit, it has crept up on me and now I’m on levodopa. I got the flu in March and I guess it caused a chain reaction of inflammation because I then had to double the levo, argh. Anyway, not to blurt out my recent life story for your enjoyment :), but somewhere in your posts I think you mentioned perhaps a group of us staying in touch via the forum as we explore options.  I would find it helpful to check in and feel a bit accountable too. Maybe we can try something like that? It would be helpful and supportive, I’m sure.

      My holistic list I’ve tried so far: exercise, of course, very helpful, not immediately after but I think the next day; butyric acid: can’t tell if it helps. I also take but can’t tell if they help, methylated B vitamins, glutathione, fish oil, and a probiotic.  and I also just bought an e-book called The Parkinsons Protocol — it was expensive and I’m hoping not a rip-off, but it gives me some hope and talks about things like fasting, etc.  Sorry for the rather meandering rundown, which probably wasn’t helpful. But I did want to chime in and see if we can all learn from each other on this lovely (!) journey and also offer you support and well wishes.

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