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JulianH

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@julianh1

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    JulianH replied to the topic Neupro patch in the forum Parkinson's Disease Medications 3 months ago

    Whoops. I think I made a mistake in the last post. Here it is in plain text.

    I’ve been using Neupro for a number of years. I started with the 1mg pstch snd am now using an 8mg for 24 hours and a 4mg for 12 hours. I’ve been told by my neurologist that because of the transdermal delivery, the dose is more even than taking a different med by mou…[Read more]

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    JulianH replied to the topic Neupro patch in the forum Parkinson's Disease Medications 3 months ago

    <p class=”p1″>I’ve been using Neupro for a number of years.<span class=”Apple-converted-space”>  </span>I started with the 1mg pstch snd am now using an 8mg for 24 hours and a 4mg for 12 hours.<span class=”Apple-converted-space”>  </span>I’ve been told by my neurologist that because of the transdermal delivery, the dose is more even than takin…[Read more]

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    JulianH replied to the topic Neupro patch in the forum Parkinson's Disease Medications 2 years, 8 months ago

    My movement disorder neurologist said that, in my case, I would have better luck using it on my upper arms rather than my thighs.

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    JulianH replied to the topic Neupro patch in the forum Parkinson's Disease Medications 2 years, 11 months ago

    I am not a swimmer like Steven, so I don’t know about whether  the patch will stay in place while swimming, but it seems to be stable in the shower.  The key thing is to read thoroughly the instructions in the box.  The instructions are probably on  the Teva (the manufacturer) website too.
    I try to find skin that is not wrinkled, make sure the pat…[Read more]

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    JulianH replied to the topic Neupro patch in the forum Parkinson's Disease Medications 2 years, 11 months ago

    I have been on Neupro for several years.  My movement disorder neurologist started me at 1mg and ramped me up to 8mg which I have used for at least 4 or 5 years.  Also 7.5 tabs/day of Sinemet, 1mg Azilect (rasagiline) and Amantadine (2/day).  No side effects from the Neupro.  My understanding of Neupro’s advantage is a more even availability, ove…[Read more]

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    JulianH started the topic Sinemet dosage in the forum Parkinson's Disease Medications 3 years, 3 months ago

    I know that each PD case is different and requires different medicinal treatment, but I’d like to do a survey about our experiences anyway.  Did anyone experience dyskinesia or hallucinations with long-term Sinemet use?  If so, at how many tablets/day? How long had you been on Sinemet? Did the side-effects disappear if you dropped your d…[Read more]

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    JulianH replied to the topic How do you answer, "How are you?" in the forum Living ​With​ ​Parkinson's Disease 3 years, 4 months ago

    Like Ally I usually give the quick response.  or sometimes “challenging” or sometimes I say (truthfully) “I am very lucky, it has been 12 years since diagnosis and it’s progressing slowly”. Or  “now I know what high maintenance really means”, or “i am learning too much about medical science”  or “fascinating disease if you don’t have it”.   I’…[Read more]

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    JulianH became a registered member 3 years, 4 months ago

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      replied 3 years, 4 months ago

      Hi Julian! Welcome to the forum. I am one of the moderators and was diagnosed at age 62 in 2015

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This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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