[Judy Kay]

Hi Robert,

Sorry I have not had time to rewrite my story.

Will get to it again one of these days.

I am so happy to find this page again, but now it is 12:10 am here.

Thank you again,

Judy

 

[Judy Kay]

Hello,

Thank you both for posting.

I have the same problem with my brain and fingers not working very well together.    I signed up for a couple of different piano courses on line.  They seem to be helping me get my fingers and brain working together somewhat.

I started playing piano at 42 years of age and had lessons for 27 years, in which I practiced  a minimum of 2 hours a day, and up to 6 or 7 on various days of the week.  I loved practicing and learning new songs and at one time I would have loved to be a professional pianist.

Now, at 76,  I can not  play a single song and it is a lot more challenging than before, I must say.

I would really like to be able to play again, because I love music and can no longer dance and can barely walk with two sticks.

I wish you well, and hope someone will come up with an answer soon.

You two will be my inspiration to not give up.

Judy

 

[Judy Kay]

Loss of mobility  stopped me from line dancing, and makes it so hard to do any and everything that I have taken for granted.

I danced 4 to 5 days a week for about 10 years and all of a sudden, I could not shuffle to the right.  Steadily got worse and withing a few months I could not dance a step.  Seriously scary and depressing.  But, I have managed to maintain my involvement with the dancers and all of my other social activities.  Staying involved and looking after others, has given my a reason to simply move the best I can.  That plus  a little anti depressant medicine helps to keep me going and somewhat positive, in spite of it.

PD is no fun, but can be a rewarding challenge all the same.

[Judy Kay]

 

Now my biggest problem is severe pain in my right buttock which runs all the way down my leg to my foot.  It makes me seriously stop to think how to turn or move in tight places.  I’ve been told by PT that it is my piriformist tightening and causing a problem with my sciatica.

Sorry, I guess I could have just given you the last paragraph.  I will try to limit myself next time.

Judy

[Judy Kay]

Christine,

I am an “A” personality also and always on the run, although it is very hard and sometimes impossible now due to my gait and mobility issues.

My first neurologist  gave me Levodopa Carbodopa and said, take this, if it helps, you have parkinson’s.  It did not help at all, and after a year, I was told to double my Levodopa Carbodopa for a couple of months and, if no improvement, stop it cold turkey.  I stopped it and still nothing changed.  My new Neurologist believes I have a form of Parkinsinisms and recently prescribed Amantadine in May of 2023.  So far I do not see any improvement with it, but I have not contacted covid, had a cold, flu, or anything else.  So maybe it does me some good, not sure.

Probably not very helpful, but thought I would let you know you are not alone. This is a very frustrating disease.

Judy

 

 

 

[Judy Kay]

Hi Joyce,

I believe my PD has something to do with my siblings, who caused me so much stress, just before and after my mother’s death.  My Mother died in April of 2019 and I was diagnosed on July 13, 2019.  I developed a problem shuffling to the right when I was line dancing, then it became harder and harder to walk.  I also was re-diagnosed with essential tremors by the same doctor at the same time.  I had been diagnose with an essential tremor 20 years early, but it wasn’t and isn’t that bad, and a little medication keeps it totally controlled.

I also had an unfaithful husband and was divorced in 1980.  I remember how traumatic and painful that was.

This is no fun, but with a positive attitude and friends,  we can make it through.  Although, with my speech being so low and hard for some people to hear or understand, I don’t know how long I will be able to be around some of those hard of hearing friends.

I also have found it valuable to go to a Support group once a month.  Doctors don’t seem to give out any information, they simply  diagnose. It is amazing the information you can get through support groups.

Good luck to you,

Judy

[Judy Kay]

Hi Ginni,

Sorry too hear that you, as a caregiver, cannot get out or have friends in.   And no music?

Where do you live?

Can you not listen to music yourself?

Hope your situation improves.  I know how hard this must be on you and your spouse. I was diagnosed in 2o19 and still get around, barely.  It gets harder and harder to stay focused long enough to accomplish the things I love to do and to stay involved with all the friends I have.    I can see how easily my husband and I could fall into the same situation, although at the moment, he is golfing.

There are a lot of nice people in the world, however, that are there for you if you just reach out.

Thank you for posting.

Lots of love and well wishes to you and your husband,

Judy

[Judy Kay]

Hi Robert.

I just spent over an hour putting my thoughts together to tell you how much I appreciate your response and why.  Then I clicked and lost it all and cannot retrieve it.

Now I have to go to bed.  But before I do, I would like you to know I value your information and  will do my best to stay motivated, because it really is something I would like to accomplish.

Hope you can stick with it too.

Thanks again,

Judy Kay