Judi
Forum Replies Created
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Bari and everyone else – can’t keep scrolling back and forth, I did post info a few hours ago but they are being held up because the first one has an address, I won’t be specific lest this one gets caught in the filter. Here’s what I think will be ok. The bed is made by a firm xalled Thomas Hilfen The specific mattress for PD is called, Thevo calm
Now I’m hoping this will work
Judi -
Bari I have the same issues that you described and have also found satin sheets be way to slippery to move around. I’ve been looking for a while but hadn’t seen anything that seemed like it would work at all. I also have the PD issue of always being too hot so I’ve shied away from foam mattresses.
I finally saw a mattress, in a program for a disability fair, that is made by a company that makes mattresses and other items for people with various disabilities.
I would name it but I’m not sure what the policy is on the forum.
I actually got the mattress delivered yesterday and I won’t review it after just one night, but last night I actually stayed in my bed for more than six hours – more than twice as long as I usually do.
The mattress has the ability to keep you from sinking into it – which seems to be my problems with regular mattresses – once I sink in, I can’t turn over or move at all. -
Hi,
I’ve been using the duopa pump for almost 3 years. I’ve found it best to put the pump in a carrying case that keeps it snug against my body. The hip/waist pack provided by the company was way too big – I could never get it tight enough. For a while I used a runners belt, which you can just step into and pull up to your waist, but the weight of the pump eventually made it sag. I finally found a hip pack that is snug – most sporting goods/clothing stores have them. Three years ago they company also offered a vest – where the pump would sit in an interior pocket and the tubing exposed as well as an set of elastic bands to hold the pump against the chest – neither of which would have worked for me. One of the company reps also suggested just putting the pump a sports bra – but it is too heavy for that.
Clothing is an issue for me as I generally prefer dresses, particularly in the summer. They show people wearing button down shirts with tubing sticking out, but I wear the pump under my clothes so that the wires don’t show – plus I avoid buttons – don’t have the dexterity for them.
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Hi,
I posted the url for the mattress earlier, and apparently hit submit more than once (don’t know how that happens but my fingers always hit stray keys…….. or it needs special moderation because it contains a url to another site.at
The mattress is called Thevocalm the company is in Germany with a branch in Washington State. The company is Thomashilfen and if you put www in front of the full name NS .US at the end it should get you to their site. -
As soon as the moderator okay’s it I will post the website of the maker/seller.
My sleep issue is fragmented sleep. For the last 5 years I had no trouble falling asleep, but woke up 2 hours later, stiff and unable to reposition myself and would wind up just getting on living room chair watching TV until morning. The perhaps good thing that came out of was I take a dose of sinemet between 2-3 am and am able to walk, albeit slowly, first thing in the morning – the bad thing is I’ve never missed that middle of the night dose.
I still have not gotten past the fragmented sleep issue, but last night, after taking a few hours break on my couch, I was able to comfortably lie down and sleep from 5-7 am
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Here’s the link, so far it’s been very good. I’m having one of my PD hot flashes, so I’ll give you a mini review later.
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Here’s the link, so far it’s been very good. I’m having one of my PD hot flashes, so I’ll give you a mini review later.
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That’s interesting as they make a point of saying that they’ve greatly reinforced the sides of the mattress specifically for wheelchair users so they can sit on the edge of the bed during transfers without damaging the mattress.
The mattress I have seems to have some reinforcement of all the sides, which I can feel just enough to know it’s there. I’m just happy to be able to sit on my bed with my feet touching the floor. -
It looks like 3 aren’t – two of which are probably the same
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My messages aren’t being posted – can you help?
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I posted just after you emailed that it was ok, but it is awaiitng moderation/approval – I accidentally post it twice. I will see if removing one will let the other one post. If it doesn’t I’ll post again with the name rather than the URL.