Forum Replies Created

  • John H Lambert

    Member
    November 2, 2019 at 2:09 pm in reply to: Are you taking any vitamin supplements to help your symptoms?

    Yes… I do take supplements with my meds. Here they are, dosage and reasoning…

    1) Vitamin Super B-Complex 350Mg 4 times a day. Made up of B1,B2,B6,B12

    B1 or Thiamine  is an excellent neuro-protector. This is well documented at PubMed

    B2 or Riboflavin helps the Serotonin another brain chemical that helps with the amount of rest the

    Parkinson’s patient gets, also helps lower extremity swelling (which most of the drugs for the Parkinson’s

              patient do)

    B6 or Pyridoxine is required for neuro-regeneration (putting back some of what we’re missing) plus growing

    nerve tissues

    B12 or Cobalamin helps to sustain red blood cells, and aids developing nerve tissues

    2) Rotate on and off Nature Made Magnesium 250 Mg 4 times a day for constipation (I do get tired of hearing my

    stomach rumble)

    3) Potassium Nature Made 100Mg 3 times daily/ most inexpensive blood pressure meds that contain HTCZ leach the

    Potassium from our bones, eventually causing muscle cramps. Potassium tablets are a good remedy for this. If the

    body needs Potassium it’ll warn us. I remember this from my PCP, “if you feel your muscles cramping due to the B/P

    meds, the lack of Potassium has already affected the heart.

    4) Vitamin D3 Nature Made 5000 IU’s daily.

    5) Mucuna Pruriens / Zandopa 1 tablespoon (1 Tbsp measuring scoop provided with product) full in a 20 Oz shake container of Chocolate Silk daily. Good source of powered L-Dopa. This brand I get from Amazon @ 200 grams per container, 2 containers every month. There’s 15.64 tablespoons in each container. Two containers will cover about a month. Starting at about 7AM I’ll make a container then sip on that all day long, returning it periodically to the fridge. Remember Silk isn’t milk, so you can use this to take your other meds with. I do this because as the Parkinson’s advances I need slightly thicker drinks to consume at meal times. At meal time I’ll drink the Almond Silk which is very tasty. Sense the Zandopa contains a small amount Stevia and therefore has a sweetness to it, the Chocolate Silk makes an excellent quick breakfast item for me.

     

  • John H Lambert

    Member
    October 24, 2019 at 12:05 am in reply to: Can you use email to communicate with your doctor?

    Being in NC and a patient at Wake Forest Baptist Medical in Winston-Salem, they have a pretty good email messaging mechanism called “MyChart”. I think everyone gets an account for the asking. I use mine, and so does my wife, she has her own account. However, the accounts cannot be cross-genned so that there’s a sharing of contacts namely doctors and other pick lists, but it’s still quite useful. Like any large corporation the usefulness of a system sometimes becomes skewered in the minds of the designers & maintainers of said system, to the point that certain things are left out. Like the need for the system to be family oriented.