Jeffrey Wiens
Forum Replies Created
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Just had DBS in November of 2022. For me it was Life changing, and I am so glad that I had the surgery. I was up to 2 – 25-100 c/l every 3 hours, and now I hardly feel like I need any at all. I have been gradually reducing the amount of c/l, with my Neurologist’s direction, and spreading out the times that I take them. I still have a long way to go, but I hope to reduce it to 3 or 4 times per day, plus at night. Went for a walk yesterday, and my wife noticed the difference in my pace right away. I was keeping up with her instead of lagging behind, and her having to wait for me. The tremor is almost completely gone! I still need some tuning to be done by my Neurologist, but so far I am extremely happy with my results! I highly recommend that anyone who is eligible for the surgery look in to it, and if you are a good candidate, that you would do it sooner rather than latter.
Jeff
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Like you, I have had Parkinson’s for about 7 years. My levodopa amount increased regularly until I was at the max dosage my neurologist would prescribe. It was then that I seriously considered DBS. I have since had the surgery and would highly recommend it if you qualify for it. It has been a complete game changer for me! I am slowly reducing the medication, and I feel great! I just got it turned on about 3 weeks ago, so it will still be a while, but I hope to get down to 4 pills a day eventually.