Jane Pinho
Forum Replies Created
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I’m speaking in a local level and promoting my journey with Parkinsons. With so many resources today just looking for assistance to help educate people that know nothing about PD and why are we afraid to be public about our disease. Common misinformation about people with PD. Help is greatly appreciated so I can help everyone challenged with a diagnosis, talking openly about their disease and what life is like for people with PD and their caregivers. Famous people help spread awareness yr not the understanding of the disease
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I’d love to know anyone in Connecticut using nicotine?
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I’ve use everything to stay warm microwave mitts, electric blanket and electric bed warmer. Heavy socks, blanket and dress in layers. I find morning exercises help but get chilly when body cools down. When in warmer weather conditions my body doesn’t adapt well going from heat. To cold but feel much better going to cold to warmth. When hot sometimes it takes my body longer to break a sweat. I try all natural supplements as well as warm foods and drinks and lots of water
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People think I’m crazy because I get so cold it’s painful. No one has ever connected with me on this. Why can’t warm treatments be covered by insurance like saunas, hot tubs, steam rooms, hot yoga, heated accessories like seat cushions, chairs, shoes, what can help improve circulation so the pain doesn’t stop you from exercising? When I can’t warm up I can’t function. My dystonia managed to take over and I’m usually begging for something to give me relief. I walk around with an electric blanket, have heating pads I put. In the microwave and have a heated chair for outdoor activities. Does anyone have this experience? What do you do for your hands and feet?
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I am at an angry stage. I don’t have a good support system. I’ve been trying to get my family and friends on board but their lives are too busy. One of my friends with PD just hired someone 2 days a week and I think that is what I will do. I don’t want to burden anyone and I also don’t want to be along. Just trying to find balance. Not sure what I can afford to do.
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I had to stop immediately as the side effects were horrible. I was so sad, could not stop crying and had severe dyskinesia