jeanne hofvendah
Forum Replies Created
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John Carter,
Thank you for your response. Yeah I fall over a lot and I walk like Im holding my arms out pretending to be an airplane. My doctor had just increased the dose and she said on exam I’m getting better but then I asked her why is my walking worse, my falling worse and now I tremor in my head and shoulders at times.
<div dir=”auto”>She said that the cl won’t help those things. But she’s sending me to physical therapy. I feel like I don’t know how to cope with Parkinson’s and I’m hoping that will pass. But it just started in January and I just got diagnosed a few months ago and since January it’s just moved like a rocket. I already had to quit working. I somehow keep thinking that I’m missing something, like there’s</div> -
I was diagnosed a month ago but it’s moved at lightning speed. I just began having a head and shoulders tremor at times. It just gets weirder.
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I’m new to this and I felt disoriented too after the med and thought it was a weird response. This whole thing is weird. But I take it every four hours so there I go again. Looking forward to people’s response. I really need help getting through this by experienced people.
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I’m just starting this journey so I’m looking at what you guys wish you learned earlier. To Todd, I read that people who get Parkinson’s are a third less active than the general population. I feel frustrated because I was always very active and my life was exercise. I also did yoga four times a week and some years of my life had done weights in the gym. And after the diagnosis it was hard to do anything because of severe fatigue. I recently had to quit working because of the weakness and fatigue and now with more time I’m going to focus on trying to get exercise again. The other problem I have is such severe nausea that I really only eat one meals worth of food in a day generally. I’ve lost the 10 or 12 lb that I gained during covid and I’m wondering what will happen because I’m a pretty thin person. But your story inspired me because I was wondering if the exercise wouldn’t make as huge a difference on me because I was already fit and active. So you let me know that yes will be helpful for me also. Yesterday I went to my first yoga class, though it was really more of a stretching class with not much that was difficult. I had to go to bed an hour after, like I usually do after any movement, but I was really happy that I was able to finish the class. I’d love to know if you have to fight through the fatigue to exercise or if you don’t have much fatigue. Mine is pretty severe. Thanks for helping me feel a little more hopeful.