Denise

When my husband first started to exercise, after diagnosis, he would tremor excessively for the first three months. It appeared that once he got fit, the tremors subsided. Now, recently he had a brain bleed post-op to Part A of DBS Surgery (the unfortunate 1%), and so his exercise program was greatly interrupted. (Its taken him several months to…[Read more]

My husband always feels as though he’s burned through his medicine much faster when he does the stair master. He believes the lack of dopamine is what makes him feel tired or weaker. He always views it as a wearing off each morning, expedited by exercise.

Thomas R- Can you please tell us where you purchased your mannitol? Can you send a link and also tell us your dose? This would be much appreciated. My husband is currently entertaining thoughts on DBS surgery, so if we could hedge that; it would be great! Thanks.

Dear Beth,
My husband did not take the usual and customary meds to start with. We wanted to postpone the inevitable inefficacy of the meds, not to mention the undesirable side effects of dyskinesias. So here is what we did: he took 1 mg of rasagaline (brand name Azilect, 1mg/daily) and did one half hour of aerobic exercise daily, keeping a…[Read more]

Dyskinesia is the unwanted side effect from synthetic dopamine. The involuntary
movements that are broad swings of the legs or torso, like what you see Michael J Fox doing when his meds are on a downward trend. My husband gets this: his toes curl (involuntary), his right leg swings in broad circles. This combination forces him to walk on the side…[Read more]

What dose are you taking and how often? How does this equate to synthetic dompanine, such as sinemet? I ordered some off the internet for my husband,
but was concerned when it arrived as a powder in a lab-like container, with
no instruction. Your insights?

My father’s maternal grandmother had PD. My husband’s maternal grandmother also had PD.

I have three children, and neither they nor do I exhibit any PD symptoms. (Well, I get restless leg,

I assumed that was a menopause gift.)

https://www.neurologylive.com/view/idiopathic-parkinson-diagnosis-deceptive