Forum Replies Created

  • DAR DAR

    Member
    February 13, 2020 at 5:46 pm in reply to: Was it difficult to find the right diagnosis?

    It took us a few months to figure out that my husband had it.  Initially, we thought he had injured his neck or shoulder.  But a shoulder MRI and EMG were normal.  So we went on our way, but then my husband started having tremors in his left arm and I noticed he wasn’t moving his left arm when he walked and was shuffling his feet.  A neck MRI and then a brain MRI came back normal.  We received our first PD diagnosis.  But the only way we were ‘sure’ it was PD was through a DATscan.  Took a month to get scheduled for one, but had the results in one day.  We are glad to know what is causing his issues, but now we feel a bit overwhelmed with trying to read about PD and figure out the best steps to take.  We’ve been told that the most important thing is exercise.  So he exercises daily.  But wondering about the medicine he is on and what changes he needs to his diet . . .

  • DAR DAR

    Member
    February 13, 2020 at 5:39 pm in reply to: Wondering About Azilect?

    Scott and Mike, thanks for your comments.  I understand, Mike, that you are only sharing your experience.  Obviously it can be different for everyone and we have to make our own decisions.  That’s crazy to hear about Visine . . . really?!  I am still interested to hear from anyone else that takes Azilect with regard to your diet and any changes you felt you needed to make or any reactions you had while on it.  Thanks very much.

  • DAR DAR

    Member
    February 13, 2020 at 3:16 pm in reply to: Wondering About Azilect?

    My husband has just been confirmed to have PD (after DATscan).  The dr. has had him on Sinemet (3x/day) for a few weeks, though, until we could get the DATscan.  He has now prescribed Azilect to take in conjunction with the Sinemet.  The pharmacist told my husband that he needed to avoid chocolate, wine, and cheese while on Azilect.  In researching the medicine, I understand this is due to tyramine.  I have seen differing information on what you can and can’t/shouldn’t eat while on Azilect, so I am wondering about other people’s experiences with Azilect and how you have changed your diet and/or any effects.  Any insights will be most appreciated.