[Cindy]

For me, the sudden loss of our ability to be able to plan anything is shocking, and terribly depressing. I’m talking about things like, walking the dog together, or going errand-running, or to the movies, the gym, anything. My wife was formally dx in 2014. They said she is a “slow-progresser”, which doesn’t translate at all to what we deal with every day. She had DBS on one side October 2018. Before that, she did Rock-Steady Boxing (boxing for those with PD) and worked part time. Since then, she has not been able to work, nor do Rock-Steady. I think her cognitive health is declining because she cannot do the things that sustain her. Add in my own health issues, and its one big depressing picture over here…I know all about self-care but just don’t have much band-width for it. This is the first time I’ve posted anything. In the past, for other awful life events, online support groups were the only thing that sustained me. This time around, I’m just burnt out thinking about having to do ONE. MORE. THING.