[Cap Sage]

I have reduced my Sinemet dose to 1/2 of a 50/100 Sinemet ER tablet every 4 hours by supplementing it with Mucuna Pruriens that I order from Swansons Vitamins here in the U.S. Each capsule is 350 mg of Mucuna purportedly controlled to 15% l-dopa which is 52.5 mg. per capsule. I used to purchase Mucuna from Vitacost here in the U.S., but the Swanson’s brand is less expensive at last check, and seems to be more controlled for consistency of strength.

[Cap Sage]

I have noticed the same phenomena, ie. not feeling worse when late dosing C/L. And I’ve also noticed feeling worse 15-30 minutes after taking C/L. I’ve tried to avoid protein 1-hr before and 1-hour after taking C/L.

Thus, I too have wondered about reducing C/L dosage. I am trying to do this by substituting mucuna-pruriens for part of my former C/L dose.

Anyone else?

[Cap Sage]

No thanks! I am appalled at the lack of serious research into the genus of Parkinson’s. While I appreciate attempts to relieve victims of Parkinsons’ horrific symptoms, of which I am all too painfully familiar, I much prefer the goal to locate and resolve the origin of Parkinson’s, which will ultimately lead to prevention and cure. There are some purported “successes” using DBS, but my 7+ decades of experience, including search, research and investigation have lead me to utilize surgery and drugs as last resorts, or in some cases, to avoid them notwithstanding the resulting pain and veritable torture.

[Cap Sage]

I try to avoid all med’s and currently only take Sinemet ER 50/200 3x/day. Natural supplements? Those I take after researching each. Things that help with PD anxiety for me are:

Calm+Calcium, Magnesium drink by Natural Vitality B4 bedtime

Vitamin B1, 1000 mg 2x/day

Vitamin B5, 500 mg B4 bedtime

Passion Flower

Valerian root B4 bedtime

Melatonin B4 bedtime

Boxing exercise

Jogging-Walking

N-Acetyl L-tyrosine  (be SURE to avoid excess vitamin B6 as I used to take this that included B6 and that causes nerve problems….CHECK THIS OUT, IT’S IMPORTANT) Swanson’s brand contains no B6.

Heatpad on tremoring foot

Those are just a few. If interested, I use probably a dozen more natural supplements.

 

[Cap Sage]

It looks as if you have enough suggestions to keep you busy for awhile! Thanks to all who replied.

I also now take Sinemet 3x/day 50/200 Carbidopa/Levodopa, but I dealt with PD over 5 years before going onto any medication.  The whole story would be a book, but I also have used and tried many natural remedies, many of which I still take or use. Similar to those you and others mentioned, I do and monitor with stats:  calisthenics, walk, jog, practice “burst exercises” in the form of working out on a big (boxing) bag, HBOT, Qi Gong, Scientology Nerve Assist, gag reflex, tandem balance, dexterity exercises, and many others. I also did adipose (using my own cells) stem cell treatment in 2017. Supplements added as researched individually: All basic vitamins,  minerals, MSM-Glucosamine-Condroitin, Curcumin, Omega-3, Coconut oil, (no caffeine, gluten, dairy, minimal sweets & grains) and I take ASEA redox supplement, L-Serine, Passion flower, mega-B1, B5, B3 (niacin, not niacinimide), B12, Magnesium, L-tryptophan, Valerian root, mucuna pruriens, garlic, DLPA, N-Acetyl L-tyrosine, CoQ10, Potassium, Ginko Biloba, Reishi, Ashwagandha, Ginseng, Black Cumin Seed oil, L-Arginine, melatonin, N-Acetyl L-cysteine, Alpha-lipoic Acid & Acetyl L-Carnitine, and some I’ve testing omitting right now (glutathione, B6, B-complex, et al). Beware of excess vitamin B6: too much can damage nerves…permanently!

I wish you the very best future, and maybe the answer to curing PD will be found by groups of those, such as ourselves, not waiting on the medicos to come up with a cure they can patent.

Best Regards,

Cap

[Cap Sage]

Dear Natalia,

I too have had increased insomnia with PD, and have tried many remedies to find what works best for me. I have, and will continue to avoid drugs and seek the most natural solutions. Before finding workable natural remedies, it was at times impossible to sleep at all, all night. One time in particular occasioned me to have my wife drive me to the ER at 6 am, and for me that signals a very serious situation.
Here are some of the remedies and supplements I have used to help my insomnia:
For sleep, I tried MANY supplements, exercises, etc. and currently use the following for sleep:

1. I take “Calm” by Natural Vitality. This was developed by Peter Gilliam and later sold to Natural Vitality in Texas. I buy it from Vitacost at below retail. This helps with sleep, AND with constipation. (it’s the magnesium) If elimination slows down, I just take an extra teaspoon at dinner, then my regular heaping teaspoon in hot water before bed.

2. I found that with PD, the same, repeated supplement-cocktail would only work once, ie. that “Parky” would negate it if repeated…so…I alternate between my best two cocktails every other night, and that has proven the best. Besides Calm, I take: B1, B5, Tryptophan, Valerian root, melatonin in varied amounts of each. I substitute the amounts of Valerian and Tryptophan every other night, 3 of one, 1 of the other.

3. I try to avoid strenuous exercise, and sources of light (computer screens, TV, cell phone screens) before bed, but I do do stretching for my lower back, and I do “Jumper Cabling” as taught by Howard Shifke at: https://www.fightingparkinsonsdrugfree.com/

4. I wake up several times each night to use the restroom, and after 5 a.m. I put on a sleeping mask like Desi and Lucy used to wear on the Lucy Show on TV. This helps avoid morning light. I also use room darkening shades and keep the bedroom as dark as possible.

5. I also do dexterity and nerve exercises before getting out of bed, then do jogging and strength exercises each day.

6. ASEA water has also helped my insomnia. For researching for PD, I use Health Unlocked also. I found it by researching ASEA water for PD. It was one of the many sites where I found ASEA mentioned by people who had tried it. In fact, the testimonial(s) I found about ASEA on Health Unlocked helped me decide to try it. It did help. In that it’s pricey, I became a distributor to help defray my cost, and to help my friends try it at my cost.
It’s backed-up by some pretty sound science, and I found many friends, some with MAJOR medical conditions who were using it with stellar success. Part of that science is that dealing with cellular level healing takes some time (like the time it takes for major illnesses like PD to manifest), so using it for the long term is the best bet as I see it because it helps the body heal on a cellular level. I’ve been using it at my current dosage since 28mar19.

If you’re interested, there is a short video explaining the basic cellular tech at: https://vimeo.com/64465323

And my web-site for ASEA is at: https://1800242709.myasealive.com/ Here one can find success stories of people using ASEA and info on distributorships. [NOTE: I DO NOT PROMOTE THIS FOR INCOME, NOR DID I BECOME A DISTRIBUTOR TO PROFIT OFF OF IT. I HAVE A INVESTMENT BUSINESS FOR MY INCOME THAT I HAVE RUN SINCE 1975. I ONLY MENTION THIS BECAUSE IT HAS HELPED ME WITH MY PARKINSON’S AND IT HAS HELPED MANY PEOPLE I KNOW WITH MAJOR MEDICAL CONDITIONS.] I also have access to specific success stories available upon request, and grouped by medical condition.

So, these are a few things I’ve found helpful for PD insomnia.

I wish you and your dad the very best, and will do what I can to help.

Best Regards,
Cap