Carol Hardbarger
Forum Replies Created
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I have struggled with sleep issues for 20 years. I have fibromyalgia. In addition to PD. It is very frustrating and I have tried everything including prescription medications which didn’t work very well for me because of side effects. I take Sinemet 3 times daily and my neuro recently added Sinemet-CR at bedtime. I find I have to keep a rigorous schedule with meds, meals, time for bed and getting up. What works best for me is to eat at 6-6:30 pm, take Nature’s Bounty Sleep 3 at 8:30 pm, take my bedtime meds at 9:30 and go to bed. If it’s going to work, it works very well. There are some of those nights that nothing helps as all of you know. Since everything has become so regimented for me, I am trying to emotionally cope with all of that. It is easy on the weekends to get off schedule and I have problems when I do. Planning a trip is difficult because of my schedule. I guess like all of us I just have to do the best that I can. If you haven’t tried to Sleep 3 I would suggest doing so. I can also tell you that I have read credible research articles recently that indicated that melatonin is a good supplement to take with Parkinson’s sleep problems.
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Unfortunately, I am just now finding out that things that have plagued me for years are symptoms of PD. I was recently diagnosed after referral to a neurologist and a DATscan. I have had increasing hand and face tremors for a number of years now, along with stiffness in my legs when walking. My worst (in my view) symptoms are excessive sweating and overactive bladder. I am lucky that I am still able to take care of myself and my home, but I am a little slower getting things done and not everything gets done!
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Marlene, I was diagnosed with fibromyalgia in 2002 and with PD about 3 months ago. Like you I never know which is causing my symptoms. I have a lot of pain in my neck, shoulders and lower back and have been hesitant to take prescribed pain meds. I also have a lot of fatigue, which seems to be less with my Parkinson’s meds, but I get tired easily. I guess I am just confused most of the time as to why I can’t feel “normal,” and do the things I need and want to do. Just thought I would reach out to you since you probably understand the dilemma of having both of these conditions.