[Brenda Ward]

New to this groups posting..BP? Mine has run on the low side most of my adult life. Have had SLE for 30+yrs (just a little health history there?) dx’d with PD and REM-SBD in 2014. I was volunteering on the cancer/infusion floor and moving from one area to another it seemed as if I was overcome with dizzy!!? nurses began taking my bp…seemed it was dropping anywhere from 20-50 points from sitting to standing…ended up in ER several times..next dxd.nOH.  Mix all these together and living in this body can be a mystery some days worse than others. Had a really bad REM-SBD episode a few weeks ago..seems as if my coffee table and I one heck of a brawl…needless to say it won! My daughter lives with me, but works at night. She has baby monitors around so she can film me should I have an episode. This one three of my drs got to view it…result now waiting on appt with neurosurgeon…mri shows compression fractures at T8:T9,and T10. I have just rambled..not really on topic, I apologize for being so wordy.????