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Barbara Ernest

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@barbielee

My wife,of 60 years passed away on July 11, 2021 just two days after her 78th birthday and 11 days before our 60th wedding anniversary. She had PD for over two decades and in the last several years suffered balance and mobility symptoms accompanied by frequent falls. As someone who liked crafts, the loss of dexterity in her hands was difficult […] View
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  • Profile picture of Barbara Ernest

    Barbara Ernest replied to the topic Does anyone else in your family have Parkinson's? in the forum Living ​With​ ​Parkinson's Disease 2 months, 2 weeks ago

    My wife who passed away at age 79 from a fall down a flight of stairs had diagnosed PD for over two decades. She started having frequent falls in the last five years of her life. She had no tremors, but her mobility, balance and dexterity worsened in her later years. Her changes in voice and visual hallucinations were obvious symptoms. To my…[Read more]

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    Barbara Ernest replied to the topic Who are you in relation to your person with Parkinson's? in the forum A​ ​Forum​ ​for​ ​Parkinson's Disease ​Caregivers​ 4 months, 3 weeks ago

    My wife has PD for over two decades. The last several years she experienced more frequent falls often serious. I was essentially her care taker the last couple years. Even though I told her never to go up or down stairs without me, she just didn’t want the disease to control her life. She never complained about having the disease. She fell down a…[Read more]

  • Profile picture of Barbara Ernest

    Barbara Ernest replied to the topic What kind of footwear do you prefer? in the forum Living ​With​ ​Parkinson's Disease 5 months, 1 week ago

    My wife could no longer tie her shoes and even some with Velcro straps were a struggle. I located some Kizik brand shoes she could slip into.

  • Profile picture of Barbara Ernest

    Barbara Ernest replied to the topic Have you hired outside help? in the forum Living ​With​ ​Parkinson's Disease 5 months, 1 week ago

    My wife was prone to falls. Once I was away for 5 hours playing senior softball and found her when I returned after she had fallen off a step. So I immediately hired a care giver to watch her while I was gone. The categiver was excellent, did a number of household chores while making sure was safe.

  • Profile picture of Barbara Ernest

    Barbara Ernest replied to the topic Who are you? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 5 months, 3 weeks ago

    My wife had PD diagnosed when she was in her late 50’s. She passed away in July 2021 at 78. Over the last several years of her life she became more dependent on me-showering, dressing, house work. Her mobility, balance and speech were affected. She had numerous falls with fractured ribs and head injuries. But while she complained of aches and p…[Read more]

  • Profile picture of Barbara Ernest

    Barbara Ernest replied to the topic Sex and intimacy with Parkinsons? in the forum Living ​With​ ​Parkinson's Disease 6 months, 1 week ago

    My wife had PD for over two decades and recently passed away from a fall. My wife enjoyed sex and intimacy until she passed away at age 78.  But things did change over those PD years. Her mobility affected the types of intimacy she was capable of without getting into specifics. In fact, to my surprise about two months before her passing she out…[Read more]

  • Profile picture of Barbara Ernest

    Barbara Ernest replied to the topic What has been your greatest challenge as a caregiver? in the forum A​ ​Forum​ ​for​ ​Parkinson's Disease ​Caregivers​ 12 months ago

    My wife had Parkinson’s for over two decades but it was not until the past several years that the decline became more a drain on her quality of life. She never complained about her affliction. The falls became more frequent and some more severe than others. Her voice changed, she started losing dexterity in her hands, more balance issues. But s…[Read more]

  • Profile picture of Barbara Ernest

    Barbara Ernest replied to the topic What has been your greatest challenge as a caregiver? in the forum A​ ​Forum​ ​for​ ​Parkinson's Disease ​Caregivers​ 12 months ago

    As her husband and caregiver who infrequently left her by herself,I purchased some pendant alarm buttons that sent a signal to audible alarms in the house. But when she had a fall or more often slid off the bed when sitting while doing something, she would rarely think to use it and not because she was incapacitated. I searched the internet for a…[Read more]

  • Profile picture of Barbara Ernest

    Barbara Ernest posted an update 1 year ago

    My wife,of 60 years passed away on July 11, 2021 just two days after her 78th birthday and 11 days before our 60th wedding anniversary. She had PD for over two decades and in the last several years suffered balance and mobility symptoms accompanied by frequent falls. As someone who liked crafts, the loss of dexterity in her hands was difficult for…[Read more]

  • Profile picture of Barbara Ernest

    Barbara Ernest replied to the topic What's your most bizarre symptom? in the forum Parkinson's Disease Symptoms 1 year, 1 month ago

    Blood pressure variations during course of the day. Often very high first up in the morning before taking any PD meds. Sometimes after taking meds – so low that cannot even get a reading. Cardiologist said it is a very complicated issue not easily controlled. Overall average during course of the day is usually normal to low.Here is one…[Read more]

  • Profile picture of Barbara Ernest

    Barbara Ernest replied to the topic Entacapone in the forum Living ​With​ ​Parkinson's Disease 1 year, 3 months ago

    Tried it with no noticeable benefit.

    I have more off days than off periods in a day.

    My main side effects of my is blood pressure variations.

     

  • Profile picture of Barbara Ernest

    Barbara Ernest posted an update 1 year, 5 months ago

    I have frequent falls and my husband provided several push button pendants that alert him in or outside the house when I fall via an audible alarm. But for some reason I fail to press the button most times though never been incapacitated. Has anyone found a tilt type alarm that could provide an audible alarm by automatically sending a signal like…[Read more]

  • Profile picture of Barbara Ernest

    Barbara Ernest posted an update 1 year, 5 months ago

    I seem to have off days rather than off periods during the day. Has anyone experienced that? Even when I take my medications on schedule.

  • Profile picture of Barbara Ernest

    Barbara Ernest commented on the post, New PD Forum Moderator 1 year, 10 months ago

    I experience visual and auditory hallucination apparently as a result of my Meds. They have seem to gotten more frequent of late. Sometimes they cause me to take risks like climbing stairs without my spouse,being

  • Profile picture of Barbara Ernest

    Barbara Ernest replied to the topic Dopatropic in the forum Parkinson's Disease Medications 1 year, 10 months ago

    Thanks for the reply. My daughter in law who I mentioned is a neurologist recommended not taking after 4pm as it might cause sleep issues. I take a combination of regular carbidopa-levadopa and the ER version 3 times a day plus two ER at bedtime. I recently read about the study recommending not taking my PD meds at meal time. So i take the…[Read more]

  • Profile picture of Barbara Ernest

    Barbara Ernest started the topic Dopatropic in the forum Parkinson's Disease Medications 1 year, 10 months ago

    My daughter in law is a neurologist and suggested I try Dopatropic as an over the counter supplement for my PD. It was recommended by another neurologist colleague of hers. Has anyone tried it. I am taking it twice daily with my morning and noon meds. Because of Covid 19, I have not seen my regular neurologist to discuss its use.

  • Profile picture of Barbara Ernest

    Barbara Ernest replied to the topic Are blood pressure drops an early sign of Parkinson's disease? in the forum Flash Briefings and Podcasts 1 year, 10 months ago

    I have systolic hypertension, after taking my PD meds in the morning I occasionally experience such a severe drop in blood pressure I cannot keep awake and need to lie down. It takes time for my blood pressure to return to “normal”. The drop in BP makes it difficult to walk and maintain balance which is a problem anyway. I have PD since the mid…[Read more]

  • Profile picture of Barbara Ernest

    Barbara Ernest became a registered member 1 year, 10 months ago

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This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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