Marjorie Weiss

JB, thanks for the response. My husband did the voice therapy and it made a big difference but he is reluctant to keep up with the vocal exercises to maintain it. I had to call him a fin asshole recently (and we are not ones to call such names) to get him to focus on my need to hear him so our relationship does not suffer more. So we practiced…[Read more]

You can also mix it in with oatmeal or into pancake batter or in baked goods. I also dissolve it in hot tea.

Try some online things on youtube. There are lots of them for PD patients.

What. Lovely thing to hear about.

I am interested in learning more about this subject

How wonderful for you.

Ne has had PD for 20 years and is 67 years old. He has also had DBS on both sides of his brain.

My husband participates in Rock Steady Boxing classes. Well worth the time as it is geared specifically for PD people

My husband had DBS in 2007 and 2009 and he still receives great benefit.  It took away his tremor (except when stressed) for years and removed all the pain he had had in his arms and legs. He does tremor now but not all the time.

There is a lot to learn, but being on this forum is a good step.

My husband was diagnosed 19 years ago, young-onset, and likely had it for years before that. In fact, he had bad depression in the 90’s and that may have been the first sign. Later they thought it was essential tremor, and he managed for several years with it but then the real diagnosis.

Deep brain stimulation gave him his life back in 2007 and…[Read more]

it helps separate you from the disease. Glad it helps.

I used it long before I knew it as calling someone with PD a Parkin. I use Parky to define the character who inhabits him and makes him sick, as opposed to him who is Dave.  I hate Parky, but love Dave.

Have you tried Rock Steady Boxing. It has helped many with balance, gait, etc.  and in this site I read good things about mannitol and OTC sugar

What a great idea Corrie. I am an author and would be willing to assist you if you move toward writing a book.

I fantasize about him dying and my feeling relief so I get it. Have you looked into respite care?

My greatest challenge is how PD chips away at us, a thief who eats him/us little by little. Dreams for our future disintegrate on a regular basis. He cannot hold my hand when we walk without losing his gait.  He cannot slow dance anymore as it is too much for his brain to process. Intimacy has waned. I cannot often hear him well due to the voice…[Read more]

My husband takes Curcumin every day. I cannot say if it helps his PD noticeably since he has taken it for several years. It is a natural anti-inflammatory
so for me it helps with joint pain.

We use this one which also has Co Q10 which PD people find beneficial. https://www.stopagingnow.com/CUQ/CUR-Q10-ULTRA-Complex

Daniel, My husband had a different experience in that his LTD payout was not affected by his getting SS Disability. He did have to get an attorney to help get the SS Disability since he was rejected the first time. He Paralegal told us almost everyone gets rejected the first time. sh knew a quadriplegic who was turned down the first time!

I…[Read more]

My husband used his LTD policy in 2006 when he could no longer work as a computer programmer. We had a policy that paid out if he could no longer do his principal job. The foresight to have gotten that policy in the 1980s saved us so that he had an income stream. He also got Disability through Social Security.

He was 54 when he started receiving…[Read more]