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Marjorie Weiss

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@weisderr

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  • Profile picture of Marjorie Weiss

    Marjorie Weiss replied to the topic What has been your greatest challenge as a caregiver? in the forum A​ ​Forum​ ​for​ ​Parkinson's Disease ​Caregivers​ 2 months, 3 weeks ago

    I am able to motivate my husband when I remind him that if he does not exercise and it affects us and not just him. Maybe that will help your mom see how important it is. I am glad my sharing has been meaningful to you

  • Profile picture of Marjorie Weiss

    Marjorie Weiss replied to the topic What has been your greatest challenge as a caregiver? in the forum A​ ​Forum​ ​for​ ​Parkinson's Disease ​Caregivers​ 3 months ago

    What state do you live in? EAch are provide differing things.

    Respite care provides short-term relief for primary caregivers. It can be arranged for just an afternoon or for several days or weeks. Care can be provided at home, in a healthcare facility, or at an adult day center.

    https://www.nia.nih.gov/health/what-respite-care

  • Profile picture of Marjorie Weiss

    Marjorie Weiss replied to the topic Have you taken any steps to protect yourself and your financial assets from Parkinson’s? in the forum Living ​With​ ​Parkinson's Disease 3 months ago

    I found this article and plan to read it thoroughly. https://www.payingforseniorcare.com/parkinsons/financial-assistance

  • Profile picture of Marjorie Weiss

    Marjorie Weiss replied to the topic Have you taken any steps to protect yourself and your financial assets from Parkinson’s? in the forum Living ​With​ ​Parkinson's Disease 3 months ago

    A trust helps you avoid probate. A will always goes to probate.  Glad you are doing well.

  • Profile picture of Marjorie Weiss

    Marjorie Weiss replied to the topic Have you taken any steps to protect yourself and your financial assets from Parkinson’s? in the forum Living ​With​ ​Parkinson's Disease 3 months ago

    We established a Legacy Trust ten years ago to avoid probate and get advice from the attorney if he needs nursing care. It includes our wills our power of attorney, our advance directives/living wills and a few other things.

  • Profile picture of Marjorie Weiss

    Marjorie Weiss replied to the topic What are your thoughts about Deep Brain Stimulation? in the forum Parkinson's Disease alternative treatments 4 months, 2 weeks ago

    Look into the LSVT Loud speech therapy for PD. It helps.

  • Profile picture of Marjorie Weiss

    Marjorie Weiss replied to the topic What are your thoughts about Deep Brain Stimulation? in the forum Parkinson's Disease alternative treatments 4 months, 2 weeks ago

    My husbands devices are from Medtronic and he can have more than one program. He usually sticks with just the one.

  • Profile picture of Marjorie Weiss

    Marjorie Weiss replied to the topic What are your thoughts about Deep Brain Stimulation? in the forum Parkinson's Disease alternative treatments 4 months, 2 weeks ago

    The speech issue is very interesting for me to have learned. Fortunately my husband has not had that issues, although the electrical signal can be changed so that he cannot speak at all. (He had a neurologist who thought that was fun to have done to him one day.! We don’t see him anymore.)

    He had success with it controlling tremor and reducing s…[Read more]

  • Profile picture of Marjorie Weiss

    Marjorie Weiss replied to the topic What are your thoughts about Deep Brain Stimulation? in the forum Parkinson's Disease alternative treatments 4 months, 3 weeks ago

    My husband went many years after his GBS surgery without taking any medication.

  • Profile picture of Marjorie Weiss

    Marjorie Weiss replied to the topic What are your thoughts about Deep Brain Stimulation? in the forum Parkinson's Disease alternative treatments 4 months, 3 weeks ago

    My husband went many years after his DBS in 2007 and 2009 without taking any medication. He did not need it. He does take carbidopa levodopa now in a very small dose.  Neurologist, however, he’s not certain that it helps him right now at all since the GPS does most of the work.

  • Profile picture of Marjorie Weiss

    Marjorie Weiss replied to the topic What are your thoughts about Deep Brain Stimulation? in the forum Parkinson's Disease alternative treatments 4 months, 3 weeks ago

    Such an wonderful response for you.

  • Profile picture of Marjorie Weiss

    Marjorie Weiss replied to the topic What are your thoughts about Deep Brain Stimulation? in the forum Parkinson's Disease alternative treatments 4 months, 3 weeks ago

    Don’t wait too long because if you begin to have cognitive impairment you likely will not get approved for it.

  • Profile picture of Marjorie Weiss

    Marjorie Weiss replied to the topic What are your thoughts about Deep Brain Stimulation? in the forum Parkinson's Disease alternative treatments 4 months, 3 weeks ago

    Good to hear about your positive result

  • Profile picture of Marjorie Weiss

    Marjorie Weiss replied to the topic Body odor in the forum Living ​With​ ​Parkinson's Disease 4 months, 4 weeks ago

    My husband’s use of Dial soap helped with the smell. I can smell the same thing on the people in his boxing class.

  • Profile picture of Marjorie Weiss

    Marjorie Weiss replied to the topic What are your thoughts about Deep Brain Stimulation? in the forum Parkinson's Disease alternative treatments 5 months ago

    My husband is a long-timer with DBS. Left brain was done in 2007; right brain done in 2009. He continues to have marvelous results from it. Meds NEVER helped him but this saved his life. A previous poster said DBS does nothing for stiffness but that has not been his experience. It loosens him up considerably.

    Just last month he has it tweaked so…[Read more]

  • Profile picture of Marjorie Weiss

    Marjorie Weiss started the topic Have you found helpful books/resources to assist caregivers? in the forum Using our forums 6 months, 3 weeks ago

    A book by a PD caregiver’s wife has been described to me as very depressing. I am wondering what may be out there to offer something more uplifting with, of course, realism as well.

    If anyone knows of such a resource, please pass it on. I am trying to assess/evaluate things that can help caregivers on topics such as:

    the silver lining amidst…[Read more]

  • Profile picture of Marjorie Weiss

    Marjorie Weiss replied to the topic Do you rely on outside help? in the forum A​ ​Forum​ ​for​ ​Parkinson's Disease ​Caregivers​ 6 months, 3 weeks ago

    I’m interested in finding out from others how they locate the outside help and resources that can assist them. From conversations with other caregivers I am not certain that we know where to begin.

  • Profile picture of Marjorie Weiss

    Marjorie Weiss replied to the topic Best Mattress for PD? in the forum Living ​With​ ​Parkinson's Disease 7 months, 1 week ago

    We have had good luck with bamboo sheets from Cariloha.  They allow him to slide just enough to turn.

  • Profile picture of Marjorie Weiss

    Marjorie Weiss replied to the topic Have you undergone Deep Brain Stimulation? in the forum Parkinson's Disease alternative treatments 7 months, 3 weeks ago

    My husband had DBS in 2007 and 2009 and still gets great benefit from both implants.

  • Profile picture of Marjorie Weiss

    Marjorie Weiss replied to the topic Have you undergone Deep Brain Stimulation? in the forum Parkinson's Disease alternative treatments 7 months, 3 weeks ago

    Talk to his neurologist to get a referral.

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This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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