Marjorie Weiss

I am able to motivate my husband when I remind him that if he does not exercise and it affects us and not just him. Maybe that will help your mom see how important it is. I am glad my sharing has been meaningful to you

What state do you live in? EAch are provide differing things.

Respite care provides short-term relief for primary caregivers. It can be arranged for just an afternoon or for several days or weeks. Care can be provided at home, in a healthcare facility, or at an adult day center.

https://www.nia.nih.gov/health/what-respite-care

I found this article and plan to read it thoroughly. https://www.payingforseniorcare.com/parkinsons/financial-assistance

A trust helps you avoid probate. A will always goes to probate.  Glad you are doing well.

We established a Legacy Trust ten years ago to avoid probate and get advice from the attorney if he needs nursing care. It includes our wills our power of attorney, our advance directives/living wills and a few other things.

Look into the LSVT Loud speech therapy for PD. It helps.

My husbands devices are from Medtronic and he can have more than one program. He usually sticks with just the one.

The speech issue is very interesting for me to have learned. Fortunately my husband has not had that issues, although the electrical signal can be changed so that he cannot speak at all. (He had a neurologist who thought that was fun to have done to him one day.! We don’t see him anymore.)

He had success with it controlling tremor and reducing s…[Read more]

My husband went many years after his GBS surgery without taking any medication.

My husband went many years after his DBS in 2007 and 2009 without taking any medication. He did not need it. He does take carbidopa levodopa now in a very small dose.  Neurologist, however, he’s not certain that it helps him right now at all since the GPS does most of the work.

Such an wonderful response for you.

Don’t wait too long because if you begin to have cognitive impairment you likely will not get approved for it.

Good to hear about your positive result

My husband’s use of Dial soap helped with the smell. I can smell the same thing on the people in his boxing class.

My husband is a long-timer with DBS. Left brain was done in 2007; right brain done in 2009. He continues to have marvelous results from it. Meds NEVER helped him but this saved his life. A previous poster said DBS does nothing for stiffness but that has not been his experience. It loosens him up considerably.

Just last month he has it tweaked so…[Read more]

I’m interested in finding out from others how they locate the outside help and resources that can assist them. From conversations with other caregivers I am not certain that we know where to begin.

We have had good luck with bamboo sheets from Cariloha.  They allow him to slide just enough to turn.

My husband had DBS in 2007 and 2009 and still gets great benefit from both implants.

Talk to his neurologist to get a referral.