Marjorie Weiss

Try hiding it in his breakfast cereal. Like hiding vegetables and things for kids. You never know maybe it’ll work. You might try the magnesium Glysinate since it is better absorbed. We have to be sneaky.

My husband tried mannitol, Brenda. He did not find it helpful after using off the whole bottles worth. So he did not continue. For his constipation he put a cap full of MiraLAX and a tablespoon or so of psyllium husk on his cereal every day and that keeps him regular. He also takes magnesium citrate every day which aids in sleep as well as pooping

Interested in knowing about that life extension supplement. I always like looking for more functional medicine approaches to situations.

following this topic for more guidance.

Linda since you are in the southeast message me. I am in Florida.

ally, I made a response and it has not posted. Lost?

My husband had DBS surgery in 2007 and 2009, for each side of his brain. Each time it was done in one surgery at Jackson Memorial Hospital in Miami. He was awake for the first part and then they put him asleep when they moved the leads into his chest for the battery placement. He went home the next day each time. Each time the battery was turned…[Read more]

Bob, why not get a bed rail? My HWP uses one and it is a big help. He also has one that fits into his

suitcase when we travel. …[Read more]

My HWP has the peeling, flaky skin. It is part of PD. His dermatologist calls it seborrheic dermatitis. He is now using Hydrocortisone 2.5% when it flares red and nasty and then Ketakonazole. We return to the dermatologist in five months for a review. It gets better when he is not in humid Florida where we live.

I am able to motivate my husband when I remind him that if he does not exercise and it affects us and not just him. Maybe that will help your mom see how important it is. I am glad my sharing has been meaningful to you

What state do you live in? EAch are provide differing things.

Respite care provides short-term relief for primary caregivers. It can be arranged for just an afternoon or for several days or weeks. Care can be provided at home, in a healthcare facility, or at an adult day center.

https://www.nia.nih.gov/health/what-respite-care

I found this article and plan to read it thoroughly. https://www.payingforseniorcare.com/parkinsons/financial-assistance

A trust helps you avoid probate. A will always goes to probate.  Glad you are doing well.

We established a Legacy Trust ten years ago to avoid probate and get advice from the attorney if he needs nursing care. It includes our wills our power of attorney, our advance directives/living wills and a few other things.

Look into the LSVT Loud speech therapy for PD. It helps.

My husbands devices are from Medtronic and he can have more than one program. He usually sticks with just the one.

The speech issue is very interesting for me to have learned. Fortunately my husband has not had that issues, although the electrical signal can be changed so that he cannot speak at all. (He had a neurologist who thought that was fun to have done to him one day.! We don’t see him anymore.)

He had success with it controlling tremor and reducing s…[Read more]

My husband went many years after his GBS surgery without taking any medication.

My husband went many years after his DBS in 2007 and 2009 without taking any medication. He did not need it. He does take carbidopa levodopa now in a very small dose.  Neurologist, however, he’s not certain that it helps him right now at all since the GPS does most of the work.

Such an wonderful response for you.