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Marjorie Weiss

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@weisderr

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  • Profile picture of Marjorie Weiss

    Marjorie Weiss replied to the topic What was your favorite 30 Days of Parkinson’s story from this year? in the forum 30 Days of Parkinson’s 2 weeks, 3 days ago

    I enjoyed them all.

  • Profile picture of Diana

    Diana and Profile picture of Marjorie WeissMarjorie Weiss are now friends 2 months ago

  • Profile picture of Marjorie Weiss

    Marjorie Weiss replied to the topic Care Partners/Givers Interested in Support Group in the forum A​ ​Forum​ ​for​ ​Parkinson's Disease ​Caregivers​ 2 months ago

    Look into melatonin for the sleep/dream issues. It has helped my husband stop having night terrors.

  • Profile picture of Marjorie Weiss

    Marjorie Weiss replied to the topic Care Partners/Givers Interested in Support Group in the forum A​ ​Forum​ ​for​ ​Parkinson's Disease ​Caregivers​ 2 months ago

    Oh, Angela. I hope you will get a second opinion on that five-year window. My husband has had PD for over twenty years and Deep BRina stimulation surgery has been his salvation. He also participates in Rock STeady Boxing classes, and had been trained in LSVT Loud therapy for his voice and LSVT Big for his movements. There is help out there.

  • Profile picture of Marjorie Weiss

    Marjorie Weiss replied to the topic Care Partners/Givers Interested in Support Group in the forum A​ ​Forum​ ​for​ ​Parkinson's Disease ​Caregivers​ 2 months ago

    I am interested. How can you securely get our info as I would not like to post my email on this thread? There is a Facebook Group for PD caregivers for those who don’t know about it, but I like the idea of something more personal as a virtual group might be.

  • Profile picture of Marjorie Weiss

    Marjorie Weiss replied to the topic Care Partners/Givers Interested in Support Group in the forum A​ ​Forum​ ​for​ ​Parkinson's Disease ​Caregivers​ 2 months ago

    I am interested. How can you securely get our info as I would not like to post my email on this thread?

  • Profile picture of Marjorie Weiss

    Marjorie Weiss replied to the topic Are you interested in sharing your story? in the forum Living ​With​ ​Parkinson's Disease 2 months, 1 week ago

    I am a caregiver to my husband who has had PD For at least 20 years (He is now 69.) He had Deep Brain Stimulation surgery in 2007 and 2009 and is still benefiting greatly from it. Marjorie

    Feel free to message me.

  • Profile picture of Marjorie Weiss

    Marjorie Weiss replied to the topic Parkinon's impact on sleep and dreaming in the forum Parkinson's Disease Symptoms 4 months ago

    Melatonin has helped calm my husband’s dreams. We had to reaserch it ourselves to see that  it was helpful.  What would we do without the internet since drs don’t tell us these things?

  • Profile picture of Marjorie Weiss

    Marjorie Weiss replied to the topic Best Mattress for PD? in the forum Living ​With​ ​Parkinson's Disease 4 months, 3 weeks ago

    We are looking into a new bed right now, a split king adjustable with two twin XL bases. Stearns and Foster and Serta both make a firm mattress that provides more support when my husband will sit on it. (He does not like how he sinks into the one we have right now while sitting on the edge of it.) Those mattresses have coils so that provides a…[Read more]

  • Profile picture of Marjorie Weiss

    Marjorie Weiss replied to the topic What has been your greatest challenge as a caregiver? in the forum A​ ​Forum​ ​for​ ​Parkinson's Disease ​Caregivers​ 6 months ago

    JB, thanks for the response. My husband did the voice therapy and it made a big difference but he is reluctant to keep up with the vocal exercises to maintain it. I had to call him a fin asshole recently (and we are not ones to call such names) to get him to focus on my need to hear him so our relationship does not suffer more. So we practiced…[Read more]

  • Profile picture of Marjorie Weiss

    Marjorie Weiss replied to the topic Collagen supplements in the forum Parkinson's Disease alternative treatments 6 months, 1 week ago

    You can also mix it in with oatmeal or into pancake batter or in baked goods. I also dissolve it in hot tea.

  • Profile picture of Marjorie Weiss

    Marjorie Weiss replied to the topic Can exercise delay Parkinson's progression? in the forum Parkinson's Disease and exercise 6 months, 2 weeks ago

    Try some online things on youtube. There are lots of them for PD patients.

  • Profile picture of Marjorie Weiss

    Marjorie Weiss replied to the topic Have you undergone Deep Brain Stimulation? in the forum Living ​With​ ​Parkinson's Disease 6 months, 3 weeks ago

    What. Lovely thing to hear about.

  • Profile picture of Marjorie Weiss

    Marjorie Weiss replied to the topic Foods that make you feel better? in the forum Parkinson's Disease alternative treatments 6 months, 3 weeks ago

    I am interested in learning more about this subject

  • Profile picture of Marjorie Weiss

    Marjorie Weiss replied to the topic Have you undergone Deep Brain Stimulation? in the forum Living ​With​ ​Parkinson's Disease 6 months, 3 weeks ago

    How wonderful for you.

  • Profile picture of Marjorie Weiss

    Marjorie Weiss replied to the topic Can exercise delay Parkinson's progression? in the forum Parkinson's Disease and exercise 6 months, 3 weeks ago

    Ne has had PD for 20 years and is 67 years old. He has also had DBS on both sides of his brain.

  • Profile picture of Marjorie Weiss

    Marjorie Weiss replied to the topic Can exercise delay Parkinson's progression? in the forum Parkinson's Disease and exercise 6 months, 3 weeks ago

    My husband participates in Rock Steady Boxing classes. Well worth the time as it is geared specifically for PD people

  • Profile picture of Marjorie Weiss

    Marjorie Weiss replied to the topic Have you undergone Deep Brain Stimulation? in the forum Living ​With​ ​Parkinson's Disease 6 months, 3 weeks ago

    My husband had DBS in 2007 and 2009 and he still receives great benefit.  It took away his tremor (except when stressed) for years and removed all the pain he had had in his arms and legs. He does tremor now but not all the time.

  • Profile picture of Marjorie Weiss

    Marjorie Weiss replied to the topic How long have you known you have Parkinson's? in the forum Living ​With​ ​Parkinson's Disease 7 months, 1 week ago

    There is a lot to learn, but being on this forum is a good step.

  • Profile picture of Marjorie Weiss

    Marjorie Weiss replied to the topic How long have you known you have Parkinson's? in the forum Living ​With​ ​Parkinson's Disease 8 months ago

    My husband was diagnosed 19 years ago, young-onset, and likely had it for years before that. In fact, he had bad depression in the 90’s and that may have been the first sign. Later they thought it was essential tremor, and he managed for several years with it but then the real diagnosis.

    Deep brain stimulation gave him his life back in 2007 and…[Read more]

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This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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