I have participated in 5 or 6 clinical trails including levedopa effects on cognition, MRI scans and most significantly photobiomodulation.

The light therapy using a Symbyx helmet and hand held laser seems to have made a marked difference with my neurologist commenting on my improvement, so much so that a tremor is about the only apparent…

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I am participating in a Flinders University in South Australia year long double blind trial of light therapy units, both helmet type and hand held on the gut. Results should be available later this year.

My participation is nearing the end and seems to be having a positive effect – hopefully it is not the placebo effect!

I was prescribed Neupro patches early in my PD journey but was unable to tell whether it was effective so am unable to recommend it.

However, I am amazed at the price difference for the patches in the US compared with here in Australia.  Both country’s patches are made in Germany but US has packs of 30 whereas Australia has 28. That does… Read more

I attend a monthly PD group meeting, sometimes with a neighbour, and find the guest speakers interesting and/or worthwhile. It is good interacting with fellow attendees after the speakers but sometimes I wish I drank tea or coffee as tap water is the only alternative!

Thanks Matt and Emily for your info re MRgFUS being a unilateral treatment.

I feel very fortunate in having no depression nor anxiety but after reading Gale’s reply breathlessness that I have attributed to asthma may be PD. Is it another of the myriad of symptoms?

Thanks Fred for your response. You said the procedure was successful for your right hand without mentioning whether your left was similarly helped.  MattR’s response suggests that MRgFUS is suitable only for one side only.

Thank you for your responses.