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Susan Swint replied to the topic Urinary and Bowell Movement problems in the forum Living With Parkinson's Disease 7 months ago
I haven’t heard that tamsulosin is prescribed very often for women, but it was the answer for painful cramping urinary urgency for me, especially for that which comes after standing up. If leaving home for 3 hrs or more, I use protective pads as well as specialty underwear (Knix brand is my preference). Instead of hopping on one foot :), leaning…[Read more]
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Susan Swint replied to the topic Are you someone who likes to research Parkinson’s disease? Or do you take it day by day? in the forum Living With Parkinson's Disease 8 months ago
Six years after being diagnosed with Parkinson’s and age 79, I still regularly read journeywithparkinsons.com and scienceofparkinsons.com , both by former biochemical researchers in the fields of protein chemistry or PD, one of whom has PD himself. They seem quite clearly written for the layman while being quite accurate. At around 30 years from…[Read more]
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Susan Swint replied to the topic Urinary Problems in the forum Parkinson's Disease Medications 10 months, 3 weeks ago
While on a fairly high and consistent dose of ibuprofen while recovering from a broken collarbone, my husband noted that my night time urgency and frequency were diminished, and my neurologist said that he had other patients report a similar effect. I now consistently take 100 mg morning and night (it helps the collarbone, still) and find it…[Read more]
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Susan Swint replied to the topic Do you struggle to write? If so, are there any tools you use to help you? in the forum Living With Parkinson's Disease 11 months, 1 week ago
http://www.vLetterinc.com A superior answer for me. This company offers dozens of “handwritten” computer fonts and will even make a custom font based on samples you provide. I use it often to print quick notes to friends where typing would seem too formal. I strongly suggest checking vLetter’s offerings and filling out your own sample to save in case…[Read more]
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Susan Swint replied to the topic Do you have theories about why you have Parkinsons? in the forum Diagnosis Information and General Questions 1 year, 8 months ago
I believe there has been some conjecture about association with earlier severe viral disease, such as the 1918 Spanish flu. (My father-in-law developed PD in his 70’s after surviving the flu on a WWI troop ship.) I had both an unusually severe case of measles in the 1950’s and a terrible bout with the flu in 1967-68. It is known many viruses can…[Read more]
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Susan Swint replied to the topic Are there any swimmers out there? in the forum Living With Parkinson's Disease 1 year, 9 months ago
I’ve been a relaxed lap swimmer, primarily side stroke and crawl, since the age of 3. I was diagnosed with Stage 1 five, years ago with right side tremor; still only on rasagiline and in a drug trial. Last summer I realized I could no longer reliably maintain my orientation in the water and developed instant cramps in my feet if doing a flutter…[Read more]
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Susan Swint replied to the topic Swollen Feet in the forum Parkinson's Disease Symptoms 1 year, 9 months ago
I had mild swelling about 5 days out of 7, especially on car trips, and our family is already on low salt diet. Physician put me in compression stockings, remarking that whatever the cause, you need to check with your doctor and not allow the problem to go untreated. A short internet search turned up an academic article linking swollen feet and…[Read more]
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Susan Swint replied to the topic Mannitol, a sugar, has given me back my life! in the forum Parkinson's Disease Medications 1 year, 11 months ago
Addition to the comment above: I am in the United States and order mannitol from PureBulk.com. Resonably priced; fast delivery; no other ingredients.
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Susan Swint replied to the topic Mannitol, a sugar, has given me back my life! in the forum Parkinson's Disease Medications 1 year, 11 months ago
I began using mannitol, 15 g/dy (one heaping teaspoon 2x/dy in at least 8 oz. fluid) 3 years ago for restoration of smell. Some sense of smell first returned after 2 months, though I had heard it might take 6 months or longer, and has persisted…I cannot smell everything or at every time, but it is a great improvement. There has been only one…[Read more]
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Susan Swint became a registered member 2 years, 8 months ago