Someone else here has written asking our opinions on how we feel about change. In that light, I’d like to bring to people’s attention an issue confronting primary care doctors “Downunder” — but I think it’s also likely to be one confronting doctors elsewhere, and therefore patients as well: see the original report…[Read more]
I think the question is too broad. How do I feel about what sort of change?
If you’re asking me about what I FEAR will happen with PD — the inexorable loss of all that I am, all that I have about myself? I don’t feel good about that. I cannot run from it. Do I “brace” for it? Let’s say I prepare myself for it — I’m much more prepared than I…[Read more]
Should I get a pet?
That’s the question I’m pondering, and would like some some feedback from from those “in the know”.
As a boy I was always in a household where there were pets — cats, dogs, birds, tropical fish.
Recently there was a cat near where I lived, and I totally loved it.
But I’ll be moving soon, and was wondering if I should get…[Read more]
looking for a past posting in the forums of the results of a survey that was conducted looking at the frequency of experiencing off times which found that, unlike earlier ideas, people can often experience clear periods of on and off even in the earlier years of being on dopamine. Anyone able to find that post for me, please?
I’ve now had PD for about three years but it’s really only been in the last few months that this seems to have become a real issue, even a problem for me. It’s especially concerning since I’ve got a co-morbidity — with diabetes, which I’ve had for over twenty years (21 in fact). One of the problems that can happen with diabetes, long-term, is…[Read more]
This is actually a plea for help — I’d like responses to an initial response of my own to an invitation for contributions to my local health authority’s development of a Disability Strategy
— see my “initial draft” of the response here — frozen by “performance anxiety” (one of my “internal demons” —thanks to Dr C for highlighting this…[Read more]
This is all very interesting BUT …
I’ve just had a quick look at the paper but it doesn’t seem clear what they mean by “early” — when neurologists think a patient has PD when …? when they’re exhibiting motor abnormalities? Sorry, but I personally wouldn’t call this early — we do know that in many cases patients can display non-motor s…[Read more]
Is there anybody else out there who’s had existing diabetes mellitus who’s later developed?
Some disturbing statistics out there! And maybe a ray of hope?
I had “T2DM” for about 20 years before being diagnosed with PD, and the way the research is going now, ALL people with “T2DM” should be closely monitored for non-motor symptoms of PD (which…[Read more]
lost my train of thought there! There’s no research sfaik about low B12 being a contributor in the prodromal stage of developing PD — like so many other things. I did have a period of low B12 a few years before being diagnosed with PD, but it was quickly corrected and GPs haven’t thought there’s any need to repeat the test/B12 injections, after…[Read more]
in New Zealand, where medications are at least partially funded by Government (under Pharmac) even if a medication has some preliminary evidence for it there might not yet be enough to warrant its prescription being subsidized — like I was mentioning for Vitamin D, and most importantly for opicapone, a relative to entacapone — both members of a…[Read more]
one really needs to be careful to not read headlines out of context — this was mentioned on ParkinsonsNewsToday BUT one needs to remember that the “subjects” — the people with PD who were studied were all low on B12 at the start. It’s not likely to be effective if you have normal/healthy levels of B12
People might be aware that those with PD are usually found to have the lowest Health-related Quality of Life, often because of the range and severity of “disabilities” they live with. Many might not be comfortable with the label of being disabled, but sometimes we need to face unpleasant realities — if we’re not “disabled” now, we probably will…[Read more]
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