Russell Wilson

I think the question is too broad. How do I feel about what sort of change?

If you’re asking me about what I FEAR will happen with PD — the inexorable loss of all that I am, all that I have about myself? I don’t feel good about that. I cannot run from it. Do I “brace” for it? Let’s say I prepare myself for it — I’m much more prepared than I…[Read more]

Should I get a pet?

That’s the question I’m pondering, and would like some some feedback from from those “in the know”.

As a boy I was always in a household where there were pets — cats, dogs, birds, tropical fish.

Recently there was a cat near where I lived, and I totally loved it.

But I’ll be moving soon, and was wondering if I should get…[Read more]

I’ve now had PD for about three years but it’s really only been in the last few months that this seems to have become a real issue, even a problem for me. It’s especially concerning since I’ve got a co-morbidity — with diabetes, which I’ve had for over twenty years (21 in fact). One of the problems that can happen with diabetes, long-term, is…[Read more]

This is all very interesting BUT …

I’ve just had a quick look at the paper but it doesn’t seem clear what they mean by “early” — when neurologists think a patient has PD when …?  when they’re exhibiting motor abnormalities? Sorry, but I personally wouldn’t call this early — we  do know that in many cases patients can display non-motor s…[Read more]

lost my train of thought there!  There’s no research sfaik about low B12 being a contributor in the prodromal stage of developing PD — like so many other things. I did have a period of low B12 a few years before being diagnosed with PD, but it was quickly corrected and GPs haven’t thought there’s any need to repeat the test/B12 injections, after…[Read more]

in New Zealand, where medications are at least partially funded by Government (under Pharmac) even if a medication has some preliminary evidence for it there might not yet be enough to warrant its prescription being subsidized — like I was mentioning for Vitamin D, and most importantly for opicapone, a relative to entacapone — both members of a…[Read more]

one really needs to be careful to not read headlines out of context — this was mentioned on ParkinsonsNewsToday BUT one needs to remember that the “subjects” — the people with PD who were studied were all low on B12 at the start. It’s not likely to be effective if you have normal/healthy levels of B12