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I have had similar but milder symptoms at times. It is hard to describe what I am feeling but you did a good job of putting it in words. In my case it is usually confined to the arms and I find myself kneading them, moving them, wanting to do just about anything to stop that sensation. I have even tried sticking them with a pin as a…[Read more]
Personally I want to go to Nombei, an Izakaya here in Honolulu. Their food is quite authentic for a place outside Japan. Then there is Arancino in the Kahala Hotel, Nobu, Rigo…..the list goes on and on.
I can’t wait to get out to restaurants, etc. I am 81 and have PD, so what do I have to lose? At most I have a few more years of being able to go out and travel and enjoy life. Hiding at home is not much of a life so it is now or never. If I lose the gamble, so be it.
If I were younger the equation might be different and I don’t judge those w…[Read more]
You don’t describe where the pain is but if it starts in the back and goes away as the day goes on, it might be the piriformis muscle. Google that for a description.
Actually I thought I saw a few flashes at first; I had forgotten about that. In my case, they didn’t persist. But, as I said, we all react differently. I formerly worked in the pharma field.
I wish there were generics from more reliable suppliers. You should read up on why Ranbaxy was fined $500 million by the FDA. (That is not a typo, it is a…[Read more]
See my reply to Bob.
The pramipexole worked for me for a while but then when the edema got too much we switched to Rytary and it has been great. But it is expensive.
I started out on carbidopa/levodopa and after about 2 years I started getting dystonia in the neck; my head would move back and forth when I didn’t ask it to.
My doctor switched me off of carbidopa/levodopa entirely and onto a dopamine agonist, pramipexole. That stopped the dystonia entirely and also took care of restless legs. The…[Read more]
The first time I took amantadine was very encouraging. About two hours after the first dose my tremors subsided remarkably.
However, that is not the full story. At the time I was taking an ACE inhibitor for blood pressure. ACE inhibitors are well known for producing a dry cough and I had one which gradually got worse. I would be OK on awakening…[Read more]
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