Rick Tabakin

At first, I had a tough time accepting the diagnosis.  But, it was pretty clear that I had the symptoms.  Once that info was digested: 1. installed grab bars in the toilet and stall shower (we have a built-in seat in the shower), 2. tried my best to keep active, 3. started speech therapy, 4. started PT with emphasis on balance.  More recently, 5.…[Read more]

Yes, I have PD (diagnosed 3 yrs ago) and experience a lot of cramping. Primarily in the legs. Mostly at night, but sometimes during the day. I try to stay hydrated, but that does not appear to help much. Have to get up and “walk off” the cramp.

My motion disorder doctor has encouraged me to continue playing pickleball, as long as I don’t fall. My playing is getting a bit worse, but appears to be limiting the progression of PD. I also recommend PT at least twice a week.

One of the symptoms of PD is sleep disturbance. I find myself waking up several times a night due to a sleep disturbance (have to urinate or had a disturbing dream). I also can’t sleep beyond 4 or 5 in the morning and often have to take a nap around 4 in the afternoon.

Travelling is more difficult with Parkinson’s. Your body hurts more. If it is cold outside or “over air-conditioned”, my PD tremors are worsened. If my medication is delayed for whateer reason, my tremors are uncontrolled.
That being said, I try to visit family at least twice a year. I take all the precautions I can think of and just deal with…[Read more]

I have back and neck pain. Went to see an orthopedist and had x-rays. Arthritis and spine related issues identified. I thought this was more age related than due to Parkinson’s. PD makes my body stiff and inflexible.

Most men develop urinary frequency issues as they age (say beyond 65 yrs old). My urologist contends this has to do with prostate enlargement. Is there data that indicates Parkinson’s makes this situation worse? What about the urinary frequency issue in women? That might be a lot clearer indication of Parkinson’s impact.

I was officially diagnosed 3 years ago, but looking back I had symptoms at least 2 years before that. It was hard to believe that I had this disease.

1. Always take extra PD medications with you when you travel. That way, if you get significantly delayed or ill, you’ll have access to the meds you need.

2. Don’t pack PD meds in checked luggage. If your luggage get lost or delayed, you can still access your meds if they’re packed into carry on luggage.

My first PD meds were part of a drug trial. I was titrated up and then back down while being frequently monitored. The trial drug did not work well for me.

Once the trail was over, the doctor started me on Sinemet and Neupro patch. It took about two months to get the right dosage on each. Since the, the doctor prescribes some minor “tweaks” to…[Read more]

Did not notice any changes relative to PD