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  • prff

    Member
    July 24, 2024 at 3:03 pm in reply to: Both myself and my wife have Parkinson’s!

    Yes, dear friends, patients and care givers, my wife and I live the dual condition of patients and care givers.

    In our house we have a large number of medicines and devices to fight our daily battle.

    What never fails is the desire to smile at our limitations, at our pains that are increasingly difficult to manage.

    Perhaps others may judge them as fools who have not done well

    The situation nor do they know what fate awaits them…

    No it does not!

    We simply chose to fight like a small but fierce army.

    We have lost many battles, painful ones, but we are sure that we will win

    War.

    Do we believe we are strong and invincible?

    No!

    We are parkinsonians not idiots!

    Paradoxically we can say that our strength has been…. :

    our awareness of being weak and fragile.

    For two, a glance is enough to understand.

    Both with young onset, my wife has had PD for more than twenty years….while I’m about to reach 10.

    It’s not easy, but in real life nothing is!

    We don’t think we’re the only ones nor do we consider ourselves heroes.

    The positive side is that neurologists only charge us for one visit, even if two of us show up…..

    Hugs to all.

    Have hope….

    PD can be managed with what medical practice already offers us today.

    And the future is full of sensational scientific discoveries.

    Some, incredibly close to coming true…….

    Perhaps, and everyone can thank their God in their own way (also because I believe that the division is on earth between men and the only truth is written in heaven) we are really close to great turning points…..but we know the innovations they are always contested.

    Courage, patient friends and care givers, we can do it.

    Even in the darkest moments, when really bad thoughts inhabit our minds, we resist, the light will come.