

Lou Hevly
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Lou Hevly replied to the discussion Do you use music to manage Parkinson's disease? in the forum Alternative Treatments 2 years ago
Do you use music to manage Parkinson's disease?
I had to give up playing both the clarinet (jazz) and the guitar (country/blues, song writing) because the PD messed up my coordination just enough that playing became frustrating. However, listening to music is still a big part of my daily activity.
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Lou Hevly replied to the discussion Which symptom is most challenging to navigate? in the forum Symptoms and Progression 2 years ago
Which symptom is most challenging to navigate?
Have you tried Kayam tablets? My wife (63 years old) swears by them. They’re on Amazon.
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Lou Hevly replied to the discussion Did you notice changes to your symptoms after getting vaccinated? in the forum COVID-19 and Parkinson’s 3 years ago
Did you notice changes to your symptoms after getting vaccinated?
Unfortunately one Pfizer shot caused severe swelling in both hands; 3 months later, the left has recovered but my right is still affected.
All this is purely anecdotal; we get vaccinated not to protect ourselves from covid, but rather to prevent spreading it to others. -
Lou Hevly replied to the discussion Speech to Text? in the forum Diagnosis Information and General Questions 3 years ago
Hi Louis,
The Chrome browser has a Speechtexter program that seems to do quite well if you… speak… very… slowly… and… distinctly. Google “speechtexter”.
The keyboards on my cell phone, both “Swype for Huawei” and “Google voice typing” have a microphone icon on the keyboard that opens a speech-totext dialog.
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Lou Hevly replied to the discussion Faith in the face of adversity in the forum Living With Parkinson's 4 years ago
Faith in the face of adversity
If bad things didn’t happen to good people (and good things to bad people), we’d all be good, but for the wrong reason: not from love, but from fear.
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Lou Hevly replied to the discussion Do you have any questions about mannitol? in the forum Alternative Treatments 4 years ago
Do you have any questions about mannitol?
I’ve been taking 7-10 grams a day (weight: 160, height 5’11) for about a month. One of my symptoms, cog-wheeling in my left shoulder, and associated discomfort when reaching up and out for something, or when flapping out a sheet when making the bed, seems to be less annoying than usual. I dissolve it in a glass of kombucha; perhaps if I took… Read more
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Lou Hevly replied to the discussion No pharmaceutical drugs? in the forum Alternative Treatments 4 years ago
What Andrew L. said. If your body is producing enough dopamine, then you don’t have PD; if it isn’t, you do and you’ll have symptoms, which can be varying degrees of tolerable. In my case, it’s Restless Leg Symptom, which would be hell without Sinemet and Mirapexin. However, “when you’ve seen one case of PD, you’ve seen one case of PD”: you may… Read more
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Lou Hevly replied to the discussion Young Onset Parkinson's Disease in the forum Living With Parkinson's 5 years ago
Young Onset Parkinson's Disease
Hola Argya:
Welcome to the list!
Wow, twenty-one is really young for the onset of Parkinson’s. But everybody’s different and you may be lucky and have minor symptoms for a long time. One thing for sure is that there are no two cases completely alike.Michael J Fox had relatively early onset, I think in his late twenties, and he still has a… Read more
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Lou Hevly replied to the discussion Wondering About Azilect? in the forum Using Our Forums 5 years ago
@frances: Only 200mg? All the suplements I’ve found on Amazon are in the 400-1200mg range.
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Lou Hevly replied to the discussion Wondering About Azilect? in the forum Using Our Forums 5 years ago
I take Azilect 1g daily along with Sinemet 3 x daily in the hope that it will delay the need to increase the Sinemet dosis in the future. I haven’t tried leaving off the Azilect to see how much worse it might get because I’m still experimenting to see whether an increase in magnesium intake –via almonds, cashews, peanuts and spinach–… Read more
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