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Laurie

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@laurie

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    Laurie replied to the topic Clonazapan in the forum Parkinson's Disease Medications 2 months, 2 weeks ago

    As a doctor, maybe you can shed light on my dilemma. See my note below. I become tolerant to one amount and then I have to increase. Now I’m on 1 mg after starting on 1/2 mg. months ago. It’s very helpful for my anxiety, sleep and movements, but I’m afraid I’ll have to keep taking more eventually.

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    Laurie replied to the topic Clonazapan in the forum Parkinson's Disease Medications 2 months, 2 weeks ago

    I’ve had chronic insomnia for years before I was diagnosed with PD. Then when I got the diagnosis I was very anxious and never had that level of anxiety before. I fell off my bed one time and landed on the floor while dreaming I was running (another PD symptom). I started taking Temazepam but my Dr said that Clonazepan would work better for me as…[Read more]

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    Laurie replied to the topic How do you deal with constipation? in the forum Parkinson's Disease Symptoms 2 months, 2 weeks ago

    My neurologist gave me this recipe that is totally natural and works like a charm:

    prune juice, applesauce, bran or flax seed

    mix in equal amounts or to your taste – you can play with the amounts

    take twice a day

    After a lifetime of constipation this is the only remedy that’s worked!

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    Laurie replied to the topic Which symptom is most challenging to navigate? in the forum Parkinson's Disease Symptoms 3 months, 1 week ago

    This is not one of the most challenging but I wanted to share it because it works. Every time I would yawn, a muscle in my throat would cramp up. I thought I was getting a heart attack. My Doctor said it was dystonia. I rub magnesium cream on my throat every day and it takes care of it, including if I get cramps in my legs in the middle of the…[Read more]

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    Laurie replied to the topic Fatigue and worsened depression following COVID-19 in a Parkinson’s patient in the forum Coronavirus (COVID-19) and Parkinson’s 3 months, 1 week ago

    Hi Omer,
    Any stress of any kind will make my PD symptoms worse so I can relate to what you are saying. Surely Covid is a stress on the system. As for his mood, getting on a L-Dopa drug could help him with more energy and that would help with less napping eventually and a better mood, but he probably needs to nap and heal now. I was on Azilect…[Read more]

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    Laurie replied to the topic What side effects do your medications have? in the forum Parkinson's Disease Medications 6 months, 4 weeks ago

    I’m on a low dose of Rytary for a month now combined with Azilect that I’ve taken for 10 months after I was first diagnosed. I have itchy skin, a dry cough, runny nose (could be pollen allergies), more constipation than I originally had. It didn’t help my tremors, but has helped me with improving my energy level which was terrible before.

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    Laurie replied to the topic Melotonin for stopping hand tremors in the forum Parkinson's Disease alternative treatments 7 months, 2 weeks ago

    Ron and all,
    Addendum….My hand tremors calm down when I deeply rest, even with slow breathing/meditating and at night in bed when I sleep. Other times I’m tremoring, and I just got on Rytary last week so I hope it will help. So far not much for tremors but I do have a little more energy and better mood.

    I would be interested in others’…[Read more]

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    Laurie replied to the topic Melotonin for stopping hand tremors in the forum Parkinson's Disease alternative treatments 7 months, 2 weeks ago

    Hi Ron, thanks for mentioning Taopatch. I never heard of it and looked it up. Wow, really pricey. What level are you using? Anyone else have any experience with it?

    As for melatonin, I used it for years after having breast cancer and it is supposed to be good for cancer prevention. I haven’t had a recurrence and it did help with sleep, but I…[Read more]

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    Laurie replied to the topic Medications in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 9 months, 3 weeks ago

    Thank you, Barbara..  That sounds like a good study.  What were the symptoms that indicated it was time to start on the medication? Was 18 months the length of time for everyone?

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    Laurie started the topic Medications in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 9 months, 3 weeks ago

    Hi, I was diagnosed 6 months ago with mild PD and my doctor put me on Rasagiline.  My PD has progressed somewhat, where my tremors are worse, sleep is worse and fatigue is great.  I’m still in the early stages. The Big and Loud program helped me a lot with movement.  I don’t think the Rasagiline has helped tremendously.  My doc believes I sho…[Read more]

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    Laurie became a registered member 9 months, 3 weeks ago

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This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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