Laurie

As a doctor, maybe you can shed light on my dilemma. See my note below. I become tolerant to one amount and then I have to increase. Now I’m on 1 mg after starting on 1/2 mg. months ago. It’s very helpful for my anxiety, sleep and movements, but I’m afraid I’ll have to keep taking more eventually.

I’ve had chronic insomnia for years before I was diagnosed with PD. Then when I got the diagnosis I was very anxious and never had that level of anxiety before. I fell off my bed one time and landed on the floor while dreaming I was running (another PD symptom). I started taking Temazepam but my Dr said that Clonazepan would work better for me as…[Read more]

My neurologist gave me this recipe that is totally natural and works like a charm:

prune juice, applesauce, bran or flax seed

mix in equal amounts or to your taste – you can play with the amounts

take twice a day

After a lifetime of constipation this is the only remedy that’s worked!

This is not one of the most challenging but I wanted to share it because it works. Every time I would yawn, a muscle in my throat would cramp up. I thought I was getting a heart attack. My Doctor said it was dystonia. I rub magnesium cream on my throat every day and it takes care of it, including if I get cramps in my legs in the middle of the…[Read more]

Hi Omer,
Any stress of any kind will make my PD symptoms worse so I can relate to what you are saying. Surely Covid is a stress on the system. As for his mood, getting on a L-Dopa drug could help him with more energy and that would help with less napping eventually and a better mood, but he probably needs to nap and heal now. I was on Azilect…[Read more]

I’m on a low dose of Rytary for a month now combined with Azilect that I’ve taken for 10 months after I was first diagnosed. I have itchy skin, a dry cough, runny nose (could be pollen allergies), more constipation than I originally had. It didn’t help my tremors, but has helped me with improving my energy level which was terrible before.

Ron and all,
Addendum….My hand tremors calm down when I deeply rest, even with slow breathing/meditating and at night in bed when I sleep. Other times I’m tremoring, and I just got on Rytary last week so I hope it will help. So far not much for tremors but I do have a little more energy and better mood.

I would be interested in others’…[Read more]

Hi Ron, thanks for mentioning Taopatch. I never heard of it and looked it up. Wow, really pricey. What level are you using? Anyone else have any experience with it?

As for melatonin, I used it for years after having breast cancer and it is supposed to be good for cancer prevention. I haven’t had a recurrence and it did help with sleep, but I…[Read more]

Thank you, Barbara..  That sounds like a good study.  What were the symptoms that indicated it was time to start on the medication? Was 18 months the length of time for everyone?