Laura

Hi Steve, I’ve dealt with severe anxiety over the years, to the point calling 911 for EMS because it felt like a heart attack.  At its worse was about 5 years ago, I was experiencing bad dyskinesia, with my neurologist we tried adjusting my meds by lowering the dosage to help with dyskinesia, which it did, but completely put me into extreme an…[Read more]

Marybeth, no my gain is excess of what I would have wanted, it seems to have leveled off now, but the extra weight remains and can’t see ,losing it.

Hi Marybeth, I had the same experience with my weight before DBS surgery.  I was never overweight, 5’4” and about 125 lbs give or take a few,  but always carried an extra few pounds in the thighs and places I could never loose, but then after years of struggling with PD, and always having to exert so much more energy to do anything, my body starte…[Read more]

Hi Mike,  I’ve had PD for 12 years now, about 5 years ago after dealing with dyskinesia, to the point of not being able to keep my balance and basically always on the verge of falling,,he suggested one more med I had not tried yet, Rytary, and it made a world of difference for, the time release aspect of this med had a much better effect on me.…[Read more]

The symptom  that impacts me the most is definitely my balance issues, it makes it hard to walk and move around freely. When I’m out I usually always walk with my hand on someone’s arm for reassurance, but for those rare occasions now when all my meds are hitting the mark at the right time, then I will walk completely  on my own for as long as i…[Read more]

Hi MaryBeth, it didn’t actually effect the the timing or dosage of my meds, but it did somewhat get my balance back, i was able to walk and stand again without always being on the verge of falling down. My major issue has been balance and it did help, it accomplished the major goal and reason I finally went through with the operation, I was able…[Read more]

Oh, for sure, meds and meal time is hard to get the scheduling right, and I’m definitely fighting a losing battle, I lose track of time, especially when I’m out, and before I know it I’m at lunch eating a burgher, at that point nothing else to do but enjoy the burgher, and deal with my PD after.

Hi Robert, congrats on keeping track of your meds regiment, but for myself, after 11 years with PD, that approach becomes overwhelming, and half the times, there never seems to be rhyme or reason to this “on” and “off” effect from my meds.  I’m off when i think I should be on, and I find it so hard to eat the right foods at right times, which…[Read more]

Hi, I live in Staten Island, NY.

My experience with PD pain was before I was diagnosed.  The only way I could explain it was that it was like a red hot dagger going through my shoulder, from front to back below my left collarbone.  I had a constant pain in  my shoulder that I would try to rub and massage away, never helping, my left arm also this dead feeling, I would say I wi…[Read more]