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Linda Johnson replied to the topic Did your symptoms change when you had Covid? in the forum Coronavirus (COVID-19) and Parkinson’s 2 months, 3 weeks ago
My husband has advanced PD, and was hospitalized with Covid. He has not fully recovered in the fifteen months since. His macular degeneration increased. His ejection fraction decreased. He is now on oxygen. His memory is confused. Freezing is now worse. I do not know if these symptoms are due to progression of the disease in general, or if…[Read more]
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Linda Johnson replied to the topic Care Partners/Givers Interested in Support Group in the forum A Forum for Parkinson's Disease Caregivers 1 year, 2 months ago
I am grateful to Diana for suggesting this. My husband has been declining for years, and I am at the point where I can no longer be a solitary caregiver. I would love to communicate with other PD caregivers. In fact, I am wondering if a dedicated message line might be even better than a monthly meeting, considering the broad range of time zo…[Read more]
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Linda Johnson replied to the topic Best Mattress for PD? in the forum Living With Parkinson's Disease 1 year, 5 months ago
We, too, would like the name/manufacturer of the disability mattress.
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Linda Johnson replied to the topic Do you have a medical alert device? in the forum Living With Parkinson's Disease 1 year, 8 months ago
We have been using Medical Guardian for two years. When the button is pushed, a real person answers. This person speaks to us by name and knows where we are located. If I have to run a brief errand or go out of earshot (to the garden or mowing the lawn) I give him the pendant. Sometimes I get a call that he has gotten his wheelchair into a cor…[Read more]
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Linda Johnson became a registered member 1 year, 9 months ago