Kathy Bettles

Hi Daniel – please look at my January 13 post that describes our experience with Mannitol. It has helped in so many ways. Just be sure and start with small amount and build up to avoid gastric response. I sincerely hope Mannitol helps you too!

Hi Jack – my husband has used two different ones – and they both seem to work the same. One is made by a company that says it is very pure and says it is for Parkinsons. The other is half the price and says it is for sweetening. I hope this helps. They probably won’t let me give the brand names here.

Just wanted to update. My husband (200 lbs) takes 1 tablespoon twice a day. He has been taking for almost 5 months. He has atypical PD, as he has no tremors and still has his sense of smell.  Mannitol has really worked for him. His balance is restored, his sleeping is much better, his face is no longer masked, his arms swing when he walks. His…[Read more]

Jack – I saw your reply after I had posted.

My hubby takes 10grams (1 tablespoon).

Good luck and stay safe all.

Ally – is it okay if I tell the amount of mannitol my husband is taking? I would like to inform these folks but don’t want to do something not allowed on this forum. In the meantime I found an amount that sounded reasonable by poking around on the web and seeing what people were saying. HWP did start slowly and up the dose. Start slowly to see if…[Read more]

Thanks so much for posting the interview! It was a great follow up to the excellent documentary.

On Instagram Live Dr. Danny Segal gave an approximate dosage and Amir Sadeh said to join Clinicrowd to find out the proper amount. Dr. Segal also advised starting with small amounts and gradually increase the dosage.

Hi. I hope to hear soon about the follow up taped video to the “My Disease, Our Revolution” documentary on Instagram Live.  Any news on that? Unfortunately I have been locked out of the Clinicrowd site (maybe I tried too often to get on) so cannot find out more information. The good news is that my husband has been taking Mannitol for a month (I…[Read more]

Hi! Will you please let us know when we can see the YouTube of the event? Will it be found under My Disease, My Revolution? We greatly enjoyed the documentary.

Also, is Clinicrowd still operational? I am having trouble getting a response to my sign up.

Looking for information on how much mannitol to take daily.

Thank you.

Kathy