Kathy Bettles

There have been much discussion about Mannitol on these forums. Maybe they can be reposted? My husband has taken for over a year. It has definitely helped but balance benefit seems to be gone. It continues to help masking.

Hi Denise – any update on symptoms reduction since you have been taking Solace? Did you take it for three months?

Yes, we are worried. I think any infection could be bad for Parkinsons. My HWP’s symptoms got much worse after having a sepsis infection. We have both already received our third vaccine. We wear masks in any indoor situation again.

Hi – my husband has had good improvements in balance (although he still falls occasionally from freezing of his feet) and masking from Mannitol. He takes 2 tablespoons daily (we started with 2 tsp and slowly worked up). We purchase the mannitol from Amazon – it is the brand that says Kitchen Alchemy. Some brands do not work and his balance got…[Read more]

I would love to see your list. I don’t see why it couldn’t be posted here.

Hi! My husband has been taking Mannitol for almost a year and it definitely helps him with masking and falling. We switched brands and those symptoms returned. We went back to the original we bought on Amazon (the cheapest one and has the words Kitchen Alchemy in the title) and those symptoms subsided. Other symptoms, such as freezing and weak…[Read more]

This reply is for Gwendolyn. Did you buy the unit from Photopharmics? It looks as though they are soon starting trials. I have signed up for information for my husband with them.  Your husband’s journey sounds similar to what we are experiencing. Mannitol has been wonderful with stopping falls but masking is creeping back. Also his voice is ge…[Read more]

This disease is being studied world wide. I continue to hold out hope for one of the many stem cell studies. They seem to finally being tested in a small amount of humans. Dan Montano is finding a way to proceed with his research into what sounds like a reasonable therapy and so are many others. My HWP is having help at managing his symptoms with…[Read more]

Hi Daniel – please look at my January 13 post that describes our experience with Mannitol. It has helped in so many ways. Just be sure and start with small amount and build up to avoid gastric response. I sincerely hope Mannitol helps you too!

Hi Jack – my husband has used two different ones – and they both seem to work the same. One is made by a company that says it is very pure and says it is for Parkinsons. The other is half the price and says it is for sweetening. I hope this helps. They probably won’t let me give the brand names here.

Just wanted to update. My husband (200 lbs) takes 1 tablespoon twice a day. He has been taking for almost 5 months. He has atypical PD, as he has no tremors and still has his sense of smell.  Mannitol has really worked for him. His balance is restored, his sleeping is much better, his face is no longer masked, his arms swing when he walks. His…[Read more]

Jack – I saw your reply after I had posted.

My hubby takes 10grams (1 tablespoon).

Good luck and stay safe all.

Ally – is it okay if I tell the amount of mannitol my husband is taking? I would like to inform these folks but don’t want to do something not allowed on this forum. In the meantime I found an amount that sounded reasonable by poking around on the web and seeing what people were saying. HWP did start slowly and up the dose. Start slowly to see if…[Read more]

Thanks so much for posting the interview! It was a great follow up to the excellent documentary.

On Instagram Live Dr. Danny Segal gave an approximate dosage and Amir Sadeh said to join Clinicrowd to find out the proper amount. Dr. Segal also advised starting with small amounts and gradually increase the dosage.

Hi. I hope to hear soon about the follow up taped video to the “My Disease, Our Revolution” documentary on Instagram Live.  Any news on that? Unfortunately I have been locked out of the Clinicrowd site (maybe I tried too often to get on) so cannot find out more information. The good news is that my husband has been taking Mannitol for a month (I…[Read more]

Hi! Will you please let us know when we can see the YouTube of the event? Will it be found under My Disease, My Revolution? We greatly enjoyed the documentary.

Also, is Clinicrowd still operational? I am having trouble getting a response to my sign up.

Looking for information on how much mannitol to take daily.

Thank you.

Kathy