• Judy posted an update 3 months, 3 weeks ago

    Hi Diana,
    I have been reading your posts and really feel for you. I’m going into my fifth year with PD and at first was so very angry and afraid because I have been so healthy all my life and haven’t had to deal with many doctors. Now there are so many. I tried to get into a support group but couldn’t find one. So I started reading this site which popped up next to my PD hand and arm exercise site. Before reading this I felt so alone, now I log in here and read in order to learn and hopefully help someone else if I can. Somewhere along the line – I cant remember if it was here – I stated my fear and feeling of being alone in this, and a very nice person emailed me to go online and read “Every Victory Counts”. I can’t sit at the computer very long as it makes my eyes foggy, so I ordered the hard copy ( about 400 pages) which was sent to me free of charge but with an envelope enclosed asking for a donation. This manual answers every question and fear I have had. It’s a Godsend. I hope all of you will pull it up online and read it. It’s not a medical manual, however, it was written by a man with PD an includes entries from other PD patients and also a number of doctors, etc. Having now educated myself in many ways and learned others’ successes, I no longer are fearful and feel I CAN continue my life even with PD.
    I hope this helps you and your husband as it has me.
    I will pray for you both,
    Judy

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