Joyce

It definitely sounds like orthostatic hypotension, Use a blood pressure machine. Take your pressure sitting, then standing, remain standing and take bp again after 3 minutes. Typically bp will drop 10-20 units, mine dropped 50! Talk to your neurologist or heart doctor.

The reason fainting occurs is to overcome gravity so blood flow can return…[Read more]

I met a woman at Parkinson’s class who had lost a daughter, I am reading about the woman who had problems after delivering her third child, I remember being doubled up on the floor in stomach pain, later diagnosed as IBS  and losing 40 pounds, after finding out my husband had been unfaithful after 30 years together.  How many of us have e…[Read more]

Hi Beth,

Sorry I missspelled it:

orthostatic hypotension

Try to cut, copy, paste, theses links:

What is nOH

THE MIDODRINE MEDICATION ALSO MADE ME SICK ITSELF-HAD TO STOP…[Read more]

I was diagnosed in 2015. Started Levo/Carbo as did you Beth in January 2020. Long story short, after 3 months of “dizzziness” , the loss of 25 pounds, 2 trips to ER, 2 to GP and finally 1 trip to my neurologist, whom I had been unable to see due to the fact that during that time he suffered at heart attack at the ER, died,  and was brought back…[Read more]

Sorry it took me so long to get this going but there is a real connection to the salt and staying hydrated. The salt is why she is swollen. Keep feet elevated when possible and the doctor can prescribe compression socks but they are about 30.00 a pair,difficult to  put on an I usually poke me thumb threw them.  I have not tried them yet but  go to…[Read more]