John Sanchelli

I have had DBS surgery for 6 years and I am thinking about adjusting my levodopa usage to a single dose at night of half of a 100 mg pill for total of 50 mg once at night.

Has anyone drastically reduced their dopamine after DBS? It has helped me with falling a lot less,

My symptom is an urge to run all of a sudden and run between rooms in the house falling down after hitting the wall or doors and door jams.  If I am outside and I get the urge to run, I run until I fall.  I have been to the emergency room and critical care place 4 times this year for stitches from falls.

• Has anyone one else had this urge to r…

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I was very scared initially about having DBS surgery performed; however, I spoke to everyone I knew (and many I did not know) about having the surgery to allay my fear of going through it.  The thing that I feared the most was having screws placed in my skull to help guide them to the right place to insert the electrode.  As I talked about it m…[Read more]