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Jan replied to the topic Neupro patch in the forum Parkinson's Disease Medications 2 months, 3 weeks ago
I wish I had been aware of all of these suggestions for optimizing the use of the Neupro patch when it was prescribed for me a couple of years ago! I had increased insomnia after I started the Neupro, and the patches weren’t staying on very well, so I tried wearing it only for about 10-12 hours and removing it well before bedtime. I didn’t notice…[Read more]
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Jan replied to the topic Focused Ultrasound Questions in the forum Parkinson's Disease alternative treatments 5 months, 1 week ago
I have not had a FUS procedure but keep in mind that FUS is just the technology used; it’s a general term and there are a variety of specific PD procedures that could be done using FUS. It’s sort of like asking about laparoscopic surgery, which is a very general term, instead of specific laparoscopic procedures such as appendectomy or gall bladder…[Read more]
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Jan replied to the topic Rytary in the forum Using our forums 9 months, 3 weeks ago
Hi C Morts,
While I hate the idea of taking a medicine to control the side effects caused by a different medicine, you might ask your doctor about mirtazipine or doxepin. They are anti-depressants but have been found to help with anxiety and sleep issues in people with Parkinson’s. I take a low dose of mirtazipine at bedtime and I think that…[Read more]
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Jan replied to the topic Where do you live? in the forum Diagnosis Information and General Questions 1 year ago
Twin Cities in Minnesota, USA
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Jan replied to the topic Traditional Chinese Medicine in the forum Parkinson's Disease alternative treatments 1 year ago
I’ve tried a variety of acupuncture treatments but didn’t notice any changes so no longer get those.
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Jan replied to the topic Mannitol Updates? Does it even taste sweet? in the forum Parkinson's Disease Medications 1 year, 3 months ago
Would you mind sharing how much you take & which brand you use? I purchased some on Amazon probably a year ago & didn’t notice any change in my symptoms. I don’t recall how much I took or how long I took it, but I think I tried it for at least a month.
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Jan replied to the topic Rytary in the forum Using our forums 1 year, 8 months ago
I tried a variety of doses of Rytary, trying to replace my Sinemet 25/100 doses which I was taking about every 3 hours with fluctuating symptoms and side effects. However, I had some acute anxiety spells with the Rytary so I discontinued it & am back to frequent dosing with immediate-release carbidopa-levodopa.
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Jan replied to the topic Have you explored speech therapy? in the forum Parkinson's Disease alternative treatments 1 year, 8 months ago
You might have him look at this website – they have free daily practice sessions & lots of helpful information. Also there is an anniversary video that shows some PwP with speech difficulties both before and after speech therapy and it might inspire and/or convince him to try it. http://www.parkinsonvoiceproject.org
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Jan replied to the topic Entacapone in the forum Living With Parkinson's Disease 1 year, 9 months ago
It seemed to improve my on time but unfortunately I had some acute anxiety attacks that I felt were tied to entacapone, and I didn’t have more of them since I stopped the med. As I recall, it also messed with my sleep cycle.
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Jan replied to the topic Faith in the face of adversity in the forum Living With Parkinson's Disease 2 years ago
I wish I had faith like many of you have voiced, but I have yet to be convinced of God’s promise to us that He would only give us what was best for us. My mother died of pancreatic cancer and she was the only piano teacher in her rural area so after she died, a number of young students had no one to teach them how to play the piano. How could that…[Read more]
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Jan replied to the topic Anyone have comments on We Have Parkinsons.com in the forum Parkinson's Disease alternative treatments 2 years, 1 month ago
I’ve been curious about this product, too. Please update after you’ve tried it for about a month, Ron.
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Jan replied to the topic Do you still have access to some form of exercise? in the forum Parkinson's Disease and exercise 2 years, 1 month ago
I didn’t have a very structured exercise program before the pandemic, but I’ve found a number of online options with programs that I can do at home with no special equipment. It’s not as socially stimulating as an in-person class would be but I can get to the class even in bad weather & never have to worry about whether my meds will be working or…[Read more]
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Jan replied to the topic Diagnosed July 2020 in the forum Diagnosis Information and General Questions 2 years, 2 months ago
Hello Beth,
My doctor prescribed for me the lowest possible dose of Mirtazapine, which is an anti-depressant but seems to help people with Parkinson’s sleep. I take it once a day, about an hour before I go to bed. It also reportedly has reduced tremors for some people but I’ve not had that result. I started taking Rytary recently instead of the…[Read more]
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Jan replied to the topic Service Dogs and Emotional Support Dogs for People with PD in the forum Living With Parkinson's Disease 2 years, 3 months ago
<p style=”text-align: center;”>Rob, I enjoyed reading your response & love the dog-share idea though I’m not certain if a dog would love it. I’m not interested in getting a pet but that could change. We had a sweet Bichon Frise for 17.75 years. Nellie was a great companion but most of her life was during my pre-PD years. Shortly after I was…[Read more]
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Jan replied to the topic Ropinirole cause of shortness of breath, anxiety-like symptoms between med dose in the forum Parkinson's Disease Medications 2 years, 4 months ago
I had a very similar reaction when I added Contam (entacapone) to my Sinemet doses recently. I’ve had shortness of breath & heart palpitations while on Sinemet alone, too, but neither my neurologist nor my cardiologist seem to think that’s the cause because that’s not a common side effect. However, I am certain that it’s the med, and after my…[Read more]
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Jan replied to the topic Do you have any questions about mannitol? in the forum Parkinson's Disease alternative treatments 2 years, 4 months ago
I registered on clinicrowd a while back but didn’t find any solid direction as to how much mannitol to take. Their info mentioned how much a person weighing 154 lbs or 198 lbs should take, and it also says to “see detailed table below” but I was unable to view a detailed table. I’ve been taking a tablespoon daily (in 2 divided doses of 1/2 tbsp…[Read more]
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Jan became a registered member 2 years, 7 months ago