Jan

I wish I had been aware of all of these suggestions for optimizing the use of the Neupro patch when it was prescribed for me a couple of years ago! I had increased insomnia after I started the Neupro, and the patches weren’t staying on very well, so I tried wearing it only for about 10-12 hours and removing it well before bedtime. I didn’t notice…[Read more]

I have not had a FUS procedure but keep in mind that FUS is just the technology used; it’s a general term and there are a variety of specific PD procedures that could be done using FUS. It’s sort of like asking about laparoscopic surgery, which is a very general term, instead of specific laparoscopic procedures such as appendectomy or gall bladder…[Read more]

Hi C Morts,

While I hate the idea of taking a medicine to control the side effects caused by a different medicine, you might ask your doctor about mirtazipine or doxepin. They are anti-depressants but have been found to help with anxiety and sleep issues in people with Parkinson’s. I take a low dose of mirtazipine at bedtime and I think that…[Read more]

Twin Cities in Minnesota, USA

I’ve tried a variety of acupuncture treatments but didn’t notice any changes so no longer get those.

Would you mind sharing how much you take & which brand you use? I purchased some on Amazon probably a year ago & didn’t notice any change in my symptoms. I don’t recall how much I took or how long I took it, but I think I tried it for at least a month.

I tried a variety of doses of Rytary, trying to replace my Sinemet 25/100 doses which I was taking about every 3 hours with fluctuating symptoms and side effects. However, I had some acute anxiety spells with the Rytary so I discontinued it & am back to frequent dosing with immediate-release carbidopa-levodopa.

You might have him look at this website – they have free daily practice sessions & lots of helpful information. Also there is an anniversary video that shows some PwP with speech difficulties both before and after speech therapy and it might inspire and/or convince him to try it. http://www.parkinsonvoiceproject.org

It seemed to improve my on time but unfortunately I had some acute anxiety attacks that I felt were tied to entacapone, and I didn’t have more of them since I stopped the med. As I recall, it also messed with my sleep cycle.

I wish I had faith like many of you have voiced, but I have yet to be convinced of God’s promise to us that He would only give us what was best for us. My mother died of pancreatic cancer and she was the only piano teacher in her rural area so after she died, a number of young students had no one to teach them how to play the piano. How could that…[Read more]

I’ve been curious about this product, too. Please update after you’ve tried it for about a month, Ron.

I didn’t have a very structured exercise program before the pandemic, but I’ve found a number of online options with programs that I can do at home with no special equipment. It’s not as socially stimulating as an in-person class would be but I can get to the class even in bad weather & never have to worry about whether my meds will be working or…[Read more]

Hello Beth,

My doctor prescribed for me the lowest possible dose of Mirtazapine, which is an anti-depressant but seems to help people with Parkinson’s sleep. I take it once a day, about an hour before I go to bed. It also reportedly has reduced tremors for some people but I’ve not had that result. I started taking Rytary recently instead of the…[Read more]

<p style=”text-align: center;”>Rob, I enjoyed reading your response & love the dog-share idea though I’m not certain if a dog would love it. I’m not interested in getting a pet but that could change. We had a sweet Bichon Frise for 17.75 years. Nellie was a great companion but most of her life was during my pre-PD years. Shortly after I was…[Read more]

I had a very similar reaction when I added Contam (entacapone) to my Sinemet doses recently. I’ve had shortness of breath & heart palpitations while on Sinemet alone, too, but neither my neurologist nor my cardiologist seem to think that’s the cause because that’s not a common side effect. However, I am certain that it’s the med, and after my…[Read more]

I registered on clinicrowd a while back but didn’t find any solid direction as to how much mannitol to take. Their info mentioned how much a person weighing 154 lbs or 198 lbs should take, and it also says to “see detailed table below” but I was unable to view a detailed table. I’ve been taking a tablespoon daily (in 2 divided doses of 1/2 tbsp…[Read more]