@janh
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Janice Hetke replied to the topic Hallucinations; have you or your loved one had them? in the forum Parkinson's Disease Symptoms 1 year, 10 months ago
For three weeks I experienced dead people touching me while I was in bed. At first didn’t see anything or anyone. Instead, I experienced a movement on the bed as if someone decided to sit on my mattress. I felt the mattress sag. After a few days of this, I started to feel someone touching my feet, then legs. I had no clue as to what was hap…[Read more]
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Janice Hetke replied to the topic A video with an interesting and entertaining perspective on PD in the forum Living With Parkinson's Disease 1 year, 11 months ago
The video was entertaining. I would add to his list, not to take yourself too seriously. Not to become a martyr to this disease. Yes, PD is a life changer, but it is not life threatening. From my viewpoint, I have seen people far worse off than myself, and it makes me realize what a good life I have. How can I say that and really mean it? …[Read more]
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Janice Hetke replied to the topic What do you think caused the onset of your PD? in the forum Diagnosis Information and General Questions 2 years ago
This is a speculation on my part with no hard evidence; but I believe my four siblings and myself were exposed to insecticides when we were living in Phoenix, AZ. We moved to Arizona in 1959, to a brand new home located a block away from a cotton field. My guess is that our new home was either built on ground that had previously been a cotton f…[Read more]
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Janice Hetke replied to the topic Your Disability Does Not Define You in the forum Living With Parkinson's Disease 2 years, 1 month ago
Jean, your pity party hat story had my husband & I laughing out loud. That’s just the kind of thing my husband would have said. One of my favorite stories is when my husband Bill & I went out to a little Italian restaurant. I forget the subject matter, but I remember I was very animated as I was speaking. I lifted my left arm, holding a for…[Read more]
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Janice Hetke replied to the topic Your Disability Does Not Define You in the forum Living With Parkinson's Disease 2 years, 1 month ago
Ally, I’m glad I made you smile, but what was happening to you that made the beginning of your day rough? I really would like to know.
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Janice Hetke started the topic Living with Multiple Chronic Diseases in the forum Living With Parkinson's Disease 2 years, 1 month ago
My name is Jan, and I’ve just recently became a member. I did so because I am hoping to find other members who live with more than one chronic disease. What interests me is learning how others cope and what strategies they use to manage more than one disease at a time. If we can start a discussion about this, I think it will be helpful to us al…[Read more]
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Janice Hetke replied to the topic Your Disability Does Not Define You in the forum Living With Parkinson's Disease 2 years, 1 month ago
Hi Alley. Thanks for the kind words. The way I feel is innate. Usually, I don’t even think about how I feel. I just am. Living in the present helps. I don’t look back and the only reason I think toward the future is to think about something fun I’m looking forward to doing. Otherwise, I keep the future in the future. With multiple chronic…[Read more]
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Janice Hetke posted a new activity comment 2 years, 1 month ago
Thank you, Jean. It’s amazing what a person can endure if there is no other choice. Probably like yourself, I take one day at a time. As I mentioned, I would love hearing from other people who have multiple chronic diseases. Learning how other people cope would be helpful. Thanks so much.
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Hi again, although I am grateful I do not have multiple diseases, I stongly believe that living in the moment can be so helpful as that is all we have, no guarantee of a tomorrow.. I wrote this blog that I hope you find helpful:
Acceptance, Gratitude and Attitude
I hope someone responds who may…[Read more]
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Janice Hetke replied to the topic Your Disability Does Not Define You in the forum Living With Parkinson's Disease 2 years, 1 month ago
Even though I was unable to pull up or read Sherri Woodbridge’s article on “Your Disability Does Not Define You,” I absolutely believe this to be true. Environment or genetics caused my diseases; I did not, purposely. I’m still the same person I was before I contracted the four chronic diseases I now have. Yes, I deal with them on a minute to m…[Read more]
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Janice Hetke posted an update 2 years, 1 month ago
Hello. I am a new member. I appreciate having this opportunity to listen to others who have PD; and to be able to express feelings and thoughts regarding my own experiences with PD. I’m not a blogger, typically, so I’m not sure how to introduce a new topic. I am interested in communicating with people who are currently dealing with multiple…[Read more]
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Hi Janice.
You dont need to be a blogger to post a topic. Choose a category from our forums page : https://parkinsonsnewstoday.com/forums/
Perhaps click on ‘Living with Parkinson’s Disease” scroll to the bottom, then click on post a new topic and type away. Does this help? -
Hi Janice! Just wanted to check in and see how you’re finding the forums so far. Have you found out how to start and/or join discussions you’re interested in? If you have any questions or ideas, please feel free to message me or Jean. 🙂
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Janice Hetke became a registered member 2 years, 1 month ago
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hi Janice
Welcome to the forum! I am one of the moderators, diagnosed in 2015 at age 61. Is there anything specific you would like to see discussed on the forum? Please feel free to post a topic.I am so sorry to hear of all the challenges you and your siblings are dealing with. I only have PD and I struggle with that. I can’t imagine what…[Read more]
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Janice, thank you so much for sharing your experience. The drugs we take for PD are so powerful and they affect one’s brain. I am glad you have found peace now. What a frightening experience you had and the fact that you suffered in silence is even more frightening. I am sure your story may give others cause to question their meds if they are…[Read more]