HMargulies

Hi Carol. Your comment “I “love” it when someone says but you look fine” really hit home. A friend who is dealing with late-stage lymphoma was told just that by a stranger who questioned the legitimacy of her handicapped parking pass! People can be really dumb–of course, until it’s affecting them. Empathy is a dying trait in modern humanity.

Yes, Jean. My right arm now has a life of its own. Putting on a jacket is now a hilarious production where I try not to look like a challenged five year old. Sometimes I think to myself, I once knew how to put on a jacket, right? Also, here’s a weird thing: my handwriting has gotten extremely teeny–but I can still draw cartoon illustrations in…[Read more]

Leg rigidity and toe curling are high on my list of misery producing symptoms. It makes walking difficult and has gotten so bad that driving is now near impossible; it’s my right leg that’s affected. I actually used to enjoy driving. Now I have trouble lifting my leg off the accelerator and pressing down on the brake. Tremor is obviously…[Read more]