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  • Apathy, lethargy, fatigue, all subsets of depression, ranging from mild to severe.

    I have had, and continue to have all of these.

    L-dopa is also said to cause hallucinations, loss of impulse control as in compulsive gambling, or shopping sprees, and hypersexuality, whatever that is supposed to mean. So far, none of these have occurred in me. I…[Read more]

  • David posted an update 9 months, 1 week ago

    I found the July 2019 study on Sex and Parkinsons illuminating: I quote: “The most novel finding of our analysis was that, irrespective of disease severity as evaluated by the H&Y, sexually active men displayed distinctive demographic and clinical features,” the researchers wrote, adding that the findings suggest “that sexual activity might be as…[Read more]

  • Hi I live in Europe and have no idea what drugs you all talk about, as the terminology is maddeningly different. However I was started on Modopar (levidopa benesaride) last May, then three months later he put me on an agonist called Entecapone. taking them together.

    Good news and bad news… Good news was my non-motor symptoms almost disappeared…[Read more]

  • Robert, I hear you… this has been my situation too. yes, it’s important to get the drugs right, and dosing etc. But see my reply to Dan. Since I started on the drug called pleasure, I’ve been a new man (as long as the Levidopa keeps the other stuff at bay…)

  • Dan, thank you for sharing. I agree that depressed dopamine must decrease motivation. How do you reverse that? By finding things that cause you pleasure (releasing dopamine) In my case, it seems to have worked! I lost the ability to play music (I was a pianist and composer) but food and wine still do the job. And sex…! Nothing like the…[Read more]

  • Wow, all this resonates with me. I “fall” out of the car too! I think it must look really insane… But when I am taking a woman out, and I want to impress her, I can somehow manage to do a little better! Motivation… BTW disclosing my PD is one of the first things I tell people on meeting. I used to be afraid, now I fin it empowering (sort of)…

     

  • Hi there, as a relatively newly diagnosed PD patient I want to thank you all for posting. Specifically, my issues with sleep are terrible muscle cramps at 3 AM, stiffness and rigidity in the left leg, numbness and burning in left foot. I think this has to do with on-off, and so last night instead of advil, I took half a dose of Modopar, it seemed…[Read more]

  • David became a registered member 9 months, 1 week ago

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