ten days of butyric acid, and no improvement to report, yet… not giving up on it tho. troubling new episodes of “freezing” in conjunction with acute muscle and skeletal pain, which i have not seen anywhere in patient discussions. any suggestions out there? i am on 500 mg modopar w. entecapone and mantadix /day. View
ten days of butyric acid, and no improvement to report, yet… not giving up on it tho. troubling new episodes of “freezing” in conjunction with acute muscle and skeletal pain, which i have not seen anywhere in patient discussions. any suggestions out there? i am on 500 mg modopar w. entecapone and mantadix /day.
Thank you, John, for the reference to the Laurence et al. article in Neurology Frontiers 10.3389/fneur.2019.00758. I have not read it thoroughly but lo and behold it begins with a discussion of seborrheic psoriasis as a strongly correlated symptom, suggesting fungal linkages. Not only do i suffer from this (I originally attributed it to UV damage…[Read more]
further to my own thread… so alpha-synuclein is a protein that somehow becomes indissoluble and clumps in the brain creating Lewy’s bodies… and it comes from the gut… perhaps, because constipation is an early prequel… Well if all that is true, and I know it’s just theory,for now: some questions to consider…
Robert, I feel for you… i used to be a pianist, now my right hand is useless. My issue is the cramping I get at night… the PAIN wakes me several times each night. Some weeks are worse than others. I thought I had “fixed it taking an extra dose of L-Dopa at bedtime, but alas…. On Sunday I was ecstatically happy, I had NO symptoms. Then,…[Read more]
Hi Mary-Beth, thanks for sharing your dad’s reactions. I neglected to say among my first responses was to embark on a journey around half the world… impulsive behaviour? Anyway, my theory goes like this. I have two brothers-in-law with PD, one dead already and the other in advanced state. Not related by blood. Although my mother and one of her…[Read more]
Wow! What a terrifying theory. And as someone who grew up about 40 minutes outside of Flint, Michigan, your story hits home. Whatever the cause, I’m sorry you’re dealing with the result. And thank you for sharing your story.
Thank you Allie, James, Dan and Russ… As I may have mentioned, after my diagnosis last year I was in denial… Now it’s time to get revenge against this “disease”… which I still don’t understand, despite Dan’s etymological explanation. I speak four languages and disease is a signifier in all, with different roots, from maladie to malattia to…[Read more]
Ditto on lettuce ! salad is a casualty… facial muscles to be sure… speech impact etc. I have to focus on every word i utter, just as i need to focus on every step i take… and the napkin is never far away!
Hi Allie, we should all be providing feedback positive and negative IMHO as you suggest. I have been on the forum a short time, and haven’t received bad advice that i am aware of, from participants. However on the Parkinsons news site I saw an article about (and advertisement for) a “natural” L-Dopa supplement, which I purchased (two bottles) from…[Read more]
Mary-Beth, sorry for your dad…y issue is not sleep as such but muscle cramps and this horrible pain in my foot and leg incorrectly diagnosed as sciatica. Of course I also have a little sciatica but this is not sciatica! Ldopa kills it, and when it wears off it’s back with à vengeance. Other things I have tried include ambien and OxyContin bo…[Read more]
Hi Mary-Beth no people do not know or want to know… even I did not want to know. For six years my doctors in Canada and Italy had me chasing false diagnoses… meantime my employer got rid of me, and later my ex wife. Total disasters. Had it not been for friends here in France I still wouldn’t know. But my neurologist is a good friend of a g…[Read more]
Hi, I am new to this forum and to this world of PD. I confess my first reaction on learning I had it was to refuse to learn anything about it. Bad enough to have it, I said, why should I cram my mind with useless info. Nine months later, on medications that seem to be doing some good (there are days I can walk with a spring in my step just like i…[Read more]
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