@catlady46
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Charne Sherman replied to the topic Akathisia, inner Parkinsons, RLS in the forum Parkinson's Disease Symptoms 6 months ago
I’ve read your replies and some of the descriptions of what you refer to as Akathisia sounds like Levodopa induced Dyskinesia which I have. I’ve tried Amantadine and Gocovri and they do work on the Dyskinesia but the side effects are so bad that I had to discontinue using them. As far as I know, there is nothing else right now that helps e…[Read more]
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Charne Sherman posted an update 8 months, 2 weeks ago
In reply to the news that Supernus will apply to the FDA to produce apomorphine for use with an infusion pump in PD patients, I am thrilled. I know someone in Ireland that uses this and she’s had very good results. I have dyskinesia and have been waiting for someone to get this approved in USA as it is to difficult to control my motor symptoms…[Read more]
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Charne Sherman replied to the topic KAILO Pain system in the forum Using our forums 9 months ago
This is the first I’m hearing about Kailo and if really works I would like to try it. I have PD and my back is bad due to stenosis, recently scoliosis and a bulging disc, all exacerbated by the PD. Do you recommend it? I will also do my own research on it as well.
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Charne Sherman replied to the topic Your Amantadine Experience? in the forum Parkinson's Disease alternative treatments 1 year ago
Hi Cemal,
I almost returned to where I was before I started amantadine. You must come off it slowly but you can return pretty much to where you were before you took it. Don’t forget that I have PD for 10 years and what I have now is pretty much the progression of PD. It is very common here in US to give carbidopa/levodopa (c/l) to early on…[Read more]
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Charne Sherman replied to the topic Your Amantadine Experience? in the forum Parkinson's Disease alternative treatments 1 year ago
Cemal,
I was given Amantadine and later Gocoveri (extended release amantadine) because I experienced dyskinesia which is a side effect of too much carbidopa/levodopa. It works very well but I had to wean off it because of side effects which were hallucinations, swollen feet, varicose veins, drooling at night and brain fog and memory. Once I w…[Read more]
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Charne Sherman became a registered member 1 year ago
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Charne Sherman became a registered member 1 year ago