Charne Sherman

I tried the back brace. I have arthritis in my back and because of PD, I hunch over a bit.  I thought it would help my posture.  Sorry, but it was not helpful to me.  As I recall, Medicare did pay for it.

I’ve read your replies and some of the descriptions of what you refer to as Akathisia sounds like Levodopa induced Dyskinesia which I have.  I’ve tried Amantadine and Gocovri and they do work on the Dyskinesia but the side effects are so bad that I had to discontinue using them.  As far as I know, there is nothing else right now that helps e…[Read more]

This is the first I’m hearing about Kailo and if really works I would like to try it.  I have PD and my back is bad due to stenosis, recently scoliosis and a bulging disc, all exacerbated by the PD.  Do you recommend it?  I will also do my own research on it as well.

Hi Cemal,

I almost returned to where I was before I started amantadine.  You must come off it slowly but you can return pretty much to where you were before you took it.  Don’t forget that I have PD for 10 years and what I have now is pretty much the progression of PD.  It is very common here in US to give carbidopa/levodopa (c/l) to early on…[Read more]

Cemal,

I was given Amantadine and later Gocoveri (extended release amantadine) because I experienced dyskinesia which is a side effect of too much carbidopa/levodopa.  It works very well but I had to wean off it because of side effects which were hallucinations, swollen feet, varicose veins, drooling at night and brain fog and memory.  Once I w…[Read more]