@catlady46
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Charne Sherman replied to the topic Akathisia, inner Parkinsons, RLS in the forum Parkinson's Disease Symptoms 7 months, 2 weeks ago
I’ve read your replies and some of the descriptions of what you refer to as Akathisia sounds like Levodopa induced Dyskinesia which I have. I’ve tried Amantadine and Gocovri and they do work on the Dyskinesia but the side effects are so bad that I had to discontinue using them. As far as I know, there is nothing else right now that helps e…[Read more]
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Charne Sherman posted an update 10 months ago
In reply to the news that Supernus will apply to the FDA to produce apomorphine for use with an infusion pump in PD patients, I am thrilled. I know someone in Ireland that uses this and she’s had very good results. I have dyskinesia and have been waiting for someone to get this approved in USA as it is to difficult to control my motor symptoms…[Read more]
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Charne Sherman replied to the topic KAILO Pain system in the forum Using our forums 10 months, 2 weeks ago
This is the first I’m hearing about Kailo and if really works I would like to try it. I have PD and my back is bad due to stenosis, recently scoliosis and a bulging disc, all exacerbated by the PD. Do you recommend it? I will also do my own research on it as well.
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Charne Sherman replied to the topic Your Amantadine Experience? in the forum Parkinson's Disease alternative treatments 1 year, 2 months ago
Hi Cemal,
I almost returned to where I was before I started amantadine. You must come off it slowly but you can return pretty much to where you were before you took it. Don’t forget that I have PD for 10 years and what I have now is pretty much the progression of PD. It is very common here in US to give carbidopa/levodopa (c/l) to early on…[Read more]
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Charne Sherman replied to the topic Your Amantadine Experience? in the forum Parkinson's Disease alternative treatments 1 year, 2 months ago
Cemal,
I was given Amantadine and later Gocoveri (extended release amantadine) because I experienced dyskinesia which is a side effect of too much carbidopa/levodopa. It works very well but I had to wean off it because of side effects which were hallucinations, swollen feet, varicose veins, drooling at night and brain fog and memory. Once I w…[Read more]
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Charne Sherman became a registered member 1 year, 2 months ago
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Charne Sherman became a registered member 1 year, 2 months ago