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William replied to the topic Have you ever been mistaken as being drunk or on drugs? in the forum Living With Parkinson's Disease 6 months ago
I have not (to my knowledge) but when I started having balance issues I went to my boss and disclosed my condition. I would occasionally bump into door jambs and such and if I got reported I wanted him to know. One night I was stopped in a drunk driving roadblock and even though I had not been drinking I realized that I probably wouldn’t pass a…[Read more]
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William replied to the topic PD and cardiac symptoms in the forum Using our forums 7 months, 1 week ago
I had to stop Rytary because it caused me to have powerful PVCs. My heart was jumpong out of my chest. I am having trouble regulating my blood pressure recently. I have been on med for bp for years always 120 over 80 but now if I take my meds I’m running 90 over 60 with orthostatic hypotension. Taking bp several times a day and medicate only when…[Read more]
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William replied to the topic Have you had to adjust your Levodopa dosage? in the forum Parkinson's Disease Medications 9 months, 1 week ago
I have been taking C/L for a few years. I started off on IR but soon started with dystonia in my foot (curled toes and cramps) so swiched to ER two tabs per 6 hours. Also tried rasagiline along the way but got serotonin syndrome and stopped. The ER worked fine for awhile but I found the first dose in the morning only lasted about 4 hours and…[Read more]
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William replied to the topic Do you struggle with sleep disturbances? in the forum Parkinson's Disease Symptoms 9 months, 1 week ago
Avoiding alcohol helps with the waking up and the need to pee. If I imbibe it is early and lightly (happy hour 3 to 6!). If I overdue it I am up every 2 hours. I try to time my Sinemet for a dose right at bedtime. I find that I tend to wake when the last dose runs out. So that limits me to about 4 hours because a dose only lasts me about 5 hours…[Read more]
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William became a registered member 10 months, 1 week ago
Hi William,
Thank you for joining our forums. Please let me know if there’s anything I can do to help improve your experience.