Barbara Ford

The last couple of years- since I have been on Rytary, I have hit the donut hole in the Medicare medication plan.

I love them!

Mary Beth,  I am fascinated with your dad gaining 20 pounds after DBS!  After I had it, I lost 20 pounds- and I didn’t have it to lose.

My neurologist said it causes brain fog in women over 70.  I didn’t realize I had brain fog until it was gone.

Dear Michael,
Medtronic is the unit.

The tremor on my left side is controlled and now I am figuring out how to stop the dyskinesia that was much worse since the DBS surgery.

I also have developed a major tremor in my right foot but that seems likely to be caused by anxiety, or stress.

Now if I can figure out how to control the dyskinesia.…[Read more]

Extraordinary Attorney Woo

Extremely well done, especially the actress who plays the autistic Attorney Woo.  Here is an opportunity for an up close look into Korean law, culture and family values.

Missed it terribly when there were no more episodes  to watch 😢.

interesting side note – some one was eating in nearly every episode. I think I now k…[Read more]

Jo, I was diagnosed at the age 65. At that time, I felt exactly as you do : I appear perfectly “normal” (aka not disabled) to most people”. Even my doctors would forget that I was a PWP.

In April of this year I had DBS, and now I am disabled. Not from tremors, but from dyskinesia. Driving is out of the question since the surgery. Being with…[Read more]

Rick, my sleep timing is exactly the same as yours. I wake up between 4 & 5 most mornings and feel alert and full of energy. I feel better about my 4:00 in the afternoon bedtime now!

Acting out, and intense dreams are a difficult PD symptom for me. After one night when I threw myself out of bed, hit my cheek bone on the bedside table, cutting it…[Read more]

Ally, yes, our kitty is very talkative, especially when I am preparing something special for him to eat. It is so funny to have a conversation with him and to see him so happy.

Douglas, that is an interesting sleep pattern. I have almost exactly the same one.  I can usually fall asleep at a normal bedtime.  At about 2:00 l wake up and stay awake until about 5, when I fall asleep again.  Usually the 8:00 medication alarm will wake me.  I take my pills and go back to sleep, until about 10:45am.  Hard to believe, but I am f…[Read more]

John, leaf fart, really??!

I laughed my head off at that?

My daughter and I share ownership of a highly intelligent Siamese named CoKitty.  CoMom, CoBoo and CoBob are the names of his staff.  He expects to be fed anytime some one is in the kitchen, demands a clean cat box, and will sneak out the back door if he catches it open.

He loves it when I stay in bed later than usual or take an afternoon nap.  …[Read more]

In April 2022, I underwent DBS at UT Southwestern. Age is 75. Year diagnosed, 2013. To qualify for the surgery, a number of tests are given by UT psychiatrists. They were testing my cognitive, logic, and problem solving abilities. They were looking for signs of dementia as well. Thankfully, these tests I passed in flying colors.
The…[Read more]

On April 19 & 29,2022, I had DBS surgery at UT Southwestern in Dallas. The first surgery was to insert the electrodes into my brain, the second surgery was to surgically implant the power source, just under my right collarbone. Both surgeries went well and I was expected to recover without difficulty.
(My age is 75, and the UT psychiatrists…[Read more]

Candleridge, Southwest Fort Worth

Kim, could this be what my neurologist calls “brain fog”? It was being caused by taking Clonazapam after the age of 70.

It was not PD, but Covid that changed my husband and my TV habits. We became hooked on the mini series on Netflix & Prime, and we will pick an additional channel for something special.  Recently that was Paramount for 1883. Our grandson did costumes for the show!

Some of the mini series we have enjoyed are Goliath, The Maid, Call the Midwives,…[Read more]

Hi Fred. I am in Fort Worth – NOT a suburb of Dallas 😉