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Barbara Ford replied to the topic Have you ever hit the Medicare prescription coverage 'gap' or 'donut hole'? in the forum Parkinson's Disease Medications 1 month, 2 weeks ago
The last couple of years- since I have been on Rytary, I have hit the donut hole in the Medicare medication plan.
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Barbara Ford replied to the topic How do you feel about Telehealth appointments? in the forum Living With Parkinson's Disease 1 month, 2 weeks ago
I love them!
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Barbara Ford replied to the topic Eating and Preparing Food for PWP in the forum A Forum for Parkinson's Disease Caregivers 5 months, 1 week ago
Mary Beth, I am fascinated with your dad gaining 20 pounds after DBS! After I had it, I lost 20 pounds- and I didn’t have it to lose.
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Barbara Ford replied to the topic Clonazapan in the forum Parkinson's Disease Medications 6 months, 3 weeks ago
My neurologist said it causes brain fog in women over 70. I didn’t realize I had brain fog until it was gone.
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Barbara Ford replied to the topic Do you identify as disabled? in the forum Living With Parkinson's Disease 8 months, 1 week ago
Dear Michael,
Medtronic is the unit.The tremor on my left side is controlled and now I am figuring out how to stop the dyskinesia that was much worse since the DBS surgery.
I also have developed a major tremor in my right foot but that seems likely to be caused by anxiety, or stress.
Now if I can figure out how to control the dyskinesia.…[Read more]
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Barbara Ford replied to the topic What are you binge-watching right now? in the forum Living With Parkinson's Disease 8 months, 1 week ago
Extraordinary Attorney Woo
Extremely well done, especially the actress who plays the autistic Attorney Woo. Here is an opportunity for an up close look into Korean law, culture and family values.
Missed it terribly when there were no more episodes to watch 😢.
interesting side note – some one was eating in nearly every episode. I think I now k…[Read more]
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Barbara Ford replied to the topic Do you identify as disabled? in the forum Living With Parkinson's Disease 8 months, 3 weeks ago
Jo, I was diagnosed at the age 65. At that time, I felt exactly as you do : I appear perfectly “normal” (aka not disabled) to most people”. Even my doctors would forget that I was a PWP.
In April of this year I had DBS, and now I am disabled. Not from tremors, but from dyskinesia. Driving is out of the question since the surgery. Being with…[Read more]
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Barbara Ford replied to the topic Do you struggle with sleep disturbances? in the forum Parkinson's Disease Symptoms 8 months, 4 weeks ago
Rick, my sleep timing is exactly the same as yours. I wake up between 4 & 5 most mornings and feel alert and full of energy. I feel better about my 4:00 in the afternoon bedtime now!
Acting out, and intense dreams are a difficult PD symptom for me. After one night when I threw myself out of bed, hit my cheek bone on the bedside table, cutting it…[Read more]
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Barbara Ford replied to the topic Do you have any pets? in the forum Living With Parkinson's Disease 9 months, 1 week ago
Ally, yes, our kitty is very talkative, especially when I am preparing something special for him to eat. It is so funny to have a conversation with him and to see him so happy.
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Barbara Ford replied to the topic Are you able to sleep through the night? in the forum Parkinson's Disease Symptoms 9 months, 4 weeks ago
Douglas, that is an interesting sleep pattern. I have almost exactly the same one. I can usually fall asleep at a normal bedtime. At about 2:00 l wake up and stay awake until about 5, when I fall asleep again. Usually the 8:00 medication alarm will wake me. I take my pills and go back to sleep, until about 10:45am. Hard to believe, but I am f…[Read more]
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Barbara Ford replied to the topic Are you able to sleep through the night? in the forum Parkinson's Disease Symptoms 10 months ago
John, leaf fart, really??!
I laughed my head off at that?
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Barbara Ford replied to the topic Do you have any pets? in the forum Living With Parkinson's Disease 10 months ago
My daughter and I share ownership of a highly intelligent Siamese named CoKitty. CoMom, CoBoo and CoBob are the names of his staff. He expects to be fed anytime some one is in the kitchen, demands a clean cat box, and will sneak out the back door if he catches it open.
He loves it when I stay in bed later than usual or take an afternoon nap. …[Read more]
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Barbara Ford changed their profile picture 11 months, 2 weeks ago
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Barbara Ford replied to the topic Have you undergone Deep Brain Stimulation? in the forum Parkinson's Disease alternative treatments 11 months, 2 weeks ago
In April 2022, I underwent DBS at UT Southwestern. Age is 75. Year diagnosed, 2013. To qualify for the surgery, a number of tests are given by UT psychiatrists. They were testing my cognitive, logic, and problem solving abilities. They were looking for signs of dementia as well. Thankfully, these tests I passed in flying colors.
The…[Read more] -
Barbara Ford replied to the topic Day 11 of #30DaysofPD: Deep Brain Stimulation Gave Me Back My Life in the forum 30 Days of Parkinson’s 11 months, 3 weeks ago
On April 19 & 29,2022, I had DBS surgery at UT Southwestern in Dallas. The first surgery was to insert the electrodes into my brain, the second surgery was to surgically implant the power source, just under my right collarbone. Both surgeries went well and I was expected to recover without difficulty.
(My age is 75, and the UT psychiatrists…[Read more] -
Peter and
Barbara Ford are now friends 1 year ago
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Barbara Ford replied to the topic Where do you live? in the forum Diagnosis Information and General Questions 1 year ago
Candleridge, Southwest Fort Worth
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Barbara Ford replied to the topic What's your weirdest symptom? in the forum Parkinson's Disease Symptoms 1 year ago
Kim, could this be what my neurologist calls “brain fog”? It was being caused by taking Clonazapam after the age of 70.
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Barbara Ford replied to the topic What are your favorite TV shows or movies? in the forum Diagnosis Information and General Questions 1 year ago
It was not PD, but Covid that changed my husband and my TV habits. We became hooked on the mini series on Netflix & Prime, and we will pick an additional channel for something special. Recently that was Paramount for 1883. Our grandson did costumes for the show!
Some of the mini series we have enjoyed are Goliath, The Maid, Call the Midwives,…[Read more]
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Barbara Ford replied to the topic Where do you live? in the forum Diagnosis Information and General Questions 1 year, 3 months ago
Hi Fred. I am in Fort Worth – NOT a suburb of Dallas 😉
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